This template was created to capture information about 30+ rare epilepsy organizations in the Rare Epilepsy Network. We have used these snapshots in workshop materials to provide a quick overview of each organization for meeting participants.
The ‘Safety of Direct Acting Antivirals (DAA) for Patients with Hepatitis C Virus (HCV)’ project examined whether patients with HCV who are prescribed newer DAA medications experienced higher rates of adverse events than patients with HCV who are untreated. Published: November 6, 2018 Author: Donna Woo
Interactive Autism Network (IAN) IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has […]
This template was created by ICN to better manage their communications and social media. Published: February 6, 2018
A nice infographic can be really useful for outreach and recruitment activities. Getting the formatting and appearances just right can be tricky though. ImproveCareNow has shared this template of their “Our Success” graphic so that others can use their structure and fill in the numbers. Use this template to help you create your own infographic, […]
This template text was composed for PCORnet investigators and collaborators of PCORnet to use in grant applications to describe the resources available and environment of PCORnet. Details of the PCORnet Distributed Research Network (DRN) structure, data infrastructure and security, and services and use cases are described. Published: May 9, 2017
Use this template to guide the creation of an overview presentation about your network or organization.
Outreach encompasses all the ways your organization involves and educates your community about relevant programs or services available. Use this document to guide the creation of an outreach plan that will help you meaningfully connect with your key stakeholders. Published: April 17, 2017
The “sneak peek” postcards are distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH’s free bi-annual digital newsletter and feature a QR code that links directly to the newsletter. Use the postcards and newsletters below to help develop and create marketing materials for your organization. PaTH to Health Diabetes Postcard (Promo for 2017 […]
The linked document was developed by the Health Systems Interactions and Sustainability Task Force and highlights critical considerations for researchers who are working with health systems. The document gives high-level guidance on key topics and provides example materials that you can use for your study. Published: June 2015