The table below contains an evolving compilation of study management resources and tools from across PCORnet. Checklists, Policies, and Other Guidance SCILHS: Publications and Presentations Policy and Procedures ADVANCE: Research Glossary GRIPP2 Reporting Checklists: Tools to Improve Reporting of Patient and Public Involvement in Research REACHnet: An overview and implications for clinical research Rare Diseases […]
The National Patient-Centered Clinical Research Network (PCORnet) released version 2.0 of the PCORnet DSA on May 5, 2017.* The DSA defines the standard terms that govern the sharing of information/data and its transfer from participating Network Data Affiliates to the PCORnet Coordinating Centers, Harvard Pilgrim Health Care Institute (HPHCI) and Duke University (Duke) (singularly or together, “the […]
The linked document was developed by the Health Systems Interactions and Sustainability Task Force and highlights critical considerations for researchers who are working with health systems. The document gives high-level guidance on key topics and provides example materials that you can use for your study. Critical Considerations for Researchers Working with Health Systems
A product of the NIH Collaboratory, the Knowledge Repository provides you with access to helpful documents and resources for conducting pragmatic clinical trials. Follow the link to access the tools.
This document was created by PRIDEnet and serves as an example of how a Participant Advisory Committee is supposed to function. Use this document as an example when creating your own bylaws.
This is IAN’s charter for its Community Advisory Council. Use it to learn more about IAN.
This is the PCORnet Data Sharing Agreement. Use it to learn more about the standard terms to which the PCORnet Coordinating Center will adhere when information/data are sent from the Network Partners to the Coordinating Center.
This is the PCORnet Common Data Model v3.1 Parseable Spreadsheet Format. Use this to get more information regarding the CDM v3.1 .
This is a copy of the PCORnet Common Data Model v3.1 Specification. Use this document to better understand the PCORnet CDM, Version 3.1.
This is the PCORnet Common Data Model v3.0 Parseable Spreadsheet Format. Use this to get more information regarding the CDM, v3.0.