ADVANCE uses this survey to regularly check in on the members of their Patient Engagement Panel. This survey collects information on their satisfaction with the group, goals for work, and other feedback. The survey is one example of a way to collect feedback from stakeholders.
The Community Engagement Studio Toolkit is part of a service offered by the Meharrry-Vanderbilt Community Engage Research Core (CERC) stemming from the Vanderbilt Institute for Clinical and Translational Research (VICTR). This toolkit helps increase the capacity of researchers to engage the community in research activities by providing a framework for them to work from. Use […]
The American Institutes for Research (AIR) developed five principles for patient-centered measurement (PCM) with input from a multidisciplinary group of stakeholders including patients. These principles describe the essential elements and characteristics of PCM. Pam Dardess, MPH, Principal Researcher Published: April 2017
LaCDRN discusses their approaches to engaging multiple stakeholder groups. In this webinar, originally hosted on June 23, 2015, you can learn about LaCDRN’s structure and how they integrate the voices of different groups within that structure. Speakers: Dr. Rebekah Angrove, LaCDRN Sarah Pallin, LaCDRN
Click here to find all of PEDSnet’s resources surrounding engagement. Here you can find information on PEDSnet’s engagement policies, human subjects protections, and stakeholder publications. To view all of PEDSnet’s resources, please go to https://pedsnet.org/resources/.
The “sneak peek” postcards are distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH’s free bi-annual digital newsletter and feature a QR code that links directly to the newsletter. Use the postcards and newsletters below to help develop and create marketing materials for your organization. Promotional Postcards PaTH to Health Diabetes Postcard (promo […]
This report details PCORnet’s plan of how it will engage stakeholders throughout the PCORnet Obesity Antibiotics Study. Use it as an example of how engage stakeholders in your study.
This is a chart outlining ADVANCE’s research engagement opportunities. Use it as a template to track your own engagement opportunities.
This is COPD PPRN’s standard criteria for patient engagement in research. Use this to view recommended patient engagement standards in research policy.
This Research Dissemination Plan from PARTNERS PPRN explains how to enable patients to more easily access research results. Use it as a template for how to disseminate research findings with participants, stakeholders, and the public.