Tag Archives: research

PCORnet CC: Direct to Patient Recruitment Resources

The goal of this guidance document is to provide researchers a brief introduction to tools aimed at direct- to-consumer recruitment to research networks and trials. While the review isn’t a comprehensive landscape analysis of the entire tool domain, it’s an accurate snapshot of tool development and utilization across PCORnet and the TIN in 2017–2018. Many […]

PCORnet Study Management Materials

The table below contains an evolving compilation of study management resources and tools from across PCORnet. Checklists, Policies, and Other Guidance SCILHS: Publications and Presentations Policy and Procedures ADVANCE: Research Glossary GRIPP2 Reporting Checklists: Tools to Improve Reporting of Patient and Public Involvement in Research REACHnet: An overview and implications for clinical research Rare Diseases […]

PCORnet Obesity Demo Projects: Study Initiation Guide

Purpose Statement (as written by the authors): This document provides a comprehensive guide for consideration at the start of PCORnet studies for use by investigators and PCORnet leadership. It is intended to serve as a tool to stimulate discussion and provide guidance for planning and decision-making during PCORnet study development. Published: April 27, 2018 Authors: […]

ADAPTABLE: Electronic Recruitment Guide

The Informatics team at UNC Chapel Hill’s CTSA used an electronic workflow to recruit participants to the ADAPTABLE Study. Tools used were the Epic EHR (particularly the patient portal, MyChart) and REDCap. These materials will help other institutions wishing to recruit study participants via Epic MyChart and/or bulk email from REDCap. You can download the documentation […]

Best Practice Sharing Session: Sourcing, Cataloguing, and Disseminating Research Innovations Across PCORnet

This Best Practice Sharing Session discusses the process the Research Innovations Workgroup used to identify innovation needs in the network, detailed their use of the Commons to facilitate cross-network collaboration, and showcased the resulting products. Five areas of interested surfaced and the workgroup leveraged the PCORnet Commons as a collaboration platform – encouraging networks to […]

PARTNERS: Research Collaboration Evaluation Form

PARTNERS uses this form to evaluate the potential research study collaborations. After a potential collaborator fills out the form, the PARTNERS research committee reviews it, asks further clarifying questions, and makes the final decision regarding eligibility to proceed. Published: August 30, 2018

PARTNERS: Research Collaboration Expectations

PARTNERS aims to improve the lives of children with rheumatic diseases through research that matters to patients and families. To achieve this aim, PARTNERS has developed this document which outlines the norms and expectations guiding their data sharing process. The document also details who is eligible to work with PARTNERS and the expectations of researchers. Published: August […]