The Informatics team at UNC Chapel Hill’s CTSA used an electronic workflow to recruit participants to the ADAPTABLE study. Tools used were the Epic EHR (particularly the patient portal, MyChart) and REDCap. These materials will help other institutions wishing to recruit study participants via Epic MyChart and/or bulk email from REDCap. You can download the documentation […]
This Best Practice Sharing Session discusses the process the Research Innovations Workgroup used to identify innovation needs in the network, detailed their use of the Commons to facilitate cross-network collaboration, and showcased the resulting products. Five areas of interested surfaced and the workgroup leveraged the PCORnet Commons as a collaboration platform – encouraging networks to […]
The Phelan-McDermid Syndrome Data Network (PMS-DN) Enrollment Drive Protocol outlines the three goals of the network’s participant enrollment project and the protocols they used to achieve those goals.
This document is an introductory guide for those interested in working with OCHIN and ADVANCE. It describes engagement and recruitment activities and gives points of contact within the network. Last updated: May 2018
This Best Practice Sharing Session originally aired on March 7, 2018. This presentation served to provide information about starting up the ADAPTABLE trial. Lessons learned on recruitment and retention are shared. Speakers: Holly Robertson, PhD, Duke Schuyler Jones, MD, Duke 2018-03-07 PCORnet BPSS_Slides
This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy.
This paired spreadsheet and instruction set provides a template and explanation of how to create a graphic representation of recruitment of participants over time. This tool can be used to understand recruitment or “accrual”, as the tool refers to it, in reports or develop ones of your own. Instructions: Accrual graph instructions- generic for sharing […]
This presentation helped answer the question, “How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?” Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices […]
Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement: Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al. Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement […]
This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, […]