Tag Archives: recruitment

PCORnet CC: Direct to Patient Recruitment Resources

The goal of this guidance document is to provide researchers a brief introduction to tools aimed at direct- to-consumer recruitment to research networks and trials. While the review isn’t a comprehensive landscape analysis of the entire tool domain, it’s an accurate snapshot of tool development and utilization across PCORnet and the TIN in 2017–2018. Many […]

ADAPTABLE: Electronic Recruitment Guide

The Informatics team at UNC Chapel Hill’s CTSA used an electronic workflow to recruit participants to the ADAPTABLE Study. Tools used were the Epic EHR (particularly the patient portal, MyChart) and REDCap. These materials will help other institutions wishing to recruit study participants via Epic MyChart and/or bulk email from REDCap. You can download the documentation […]

Best Practice Sharing Session: Sourcing, Cataloguing, and Disseminating Research Innovations Across PCORnet

This Best Practice Sharing Session discusses the process the Research Innovations Workgroup used to identify innovation needs in the network, detailed their use of the Commons to facilitate cross-network collaboration, and showcased the resulting products. Five areas of interested surfaced and the workgroup leveraged the PCORnet Commons as a collaboration platform – encouraging networks to […]

Best Practice Sharing Session: Lessons Learned in ADAPTABLE

This presentation served to provide information about starting up the ADAPTABLE trial. Lessons learned on recruitment and retention are shared. Download the presentation. Watch the recording. Presented: March 7, 2018 Speakers: Dr. Holly Robertson, PhD, Duke and Dr. Schuyler Jones, MD, Duke

ABOUT Network: FORCE HBOC Research Study Search Tool Webinar

ABOUT Network‘s webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Published: February […]

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

This presentation helped answer the question, “How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?” Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Presented: May 6, 2015 Speaker: Dr. Tom Carton, REACHnet

Strategies to Increase Inclusiveness

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement […]

Health eHeart Alliance: Eureka Digital Research Platform

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, […]