Tag Archives: PCORnet

PRIDEnet: PCORnet Recommendations for SOGI Data Elements in CDM v3.1

“PCORnet Recommendations for SOGI Data Elements in CDM v3.1” was written by co-directors Dr. Mitchell Lunn and Dr. Juno Obedin-Maliver. It is based on research literature, our co-directors’ clinical and research expertise, and definitely informed by participant data in our pilot research (~18,000 enrolled participants). Published: November 4, 2016

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2

This presentation examined e-consent from several different perspectives. The presentation discussed different technologies used to obtain consent in different contexts. It details different guidelines as well as use of layered consent. Download the presentation. Watch the recording. Presented: November 13, 2017 Speakers: Dr. Holly Peay, RTI, Dr. Erin Rothwell, University of Utah, David Borasky, WIRB-Copernicus […]

Best Practice Sharing Session: Design and Development of an Operational Privacy Protecting Record Linkage Tool

Protecting the privacy of patients while using their medical records is an important issue in today’s research world. This webinar discusses the design and development of an operational privacy protecting record linkage tool. Presented: April 29, 2015 Speaker: Dr. Abel Kho, CAPriCORN

Best Practice Sharing Session: Creative Commons: Extending the Value of PCORnet Efforts

This presentation goes over the differences between intellectual property and data, Open Access, attributions, and CC licenses. Presented: January 26, 2015 Speaker: John Wilbanks

Best Practice Sharing Session: Statistical Analyses in Distributed Research Networks

Dr. Toh and Dr. Li gave examples of research conducted within distributed networks with horizontally partitioned data. They then hosted a discussion and spoke about how vertically partitioned data could be useful to PCORnet. Presented: March 16, 2015 Speakers: Dr. Darren Toh, Harvard Medical School/Harvard Pilgrim Health Care Institute Dr. Lingling Li, Harvard Medical School/Harvard Pilgrim Health […]

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

This presentation helped answer the question, “How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?” Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Presented: May 6, 2015 Speaker: Dr. Tom Carton, REACHnet