Tag Archives: engagement

IBD Partners’ Top Citizen Scientist Award Toolkit: A model for meaningful engagement

In this toolkit, you will find resources IBD Partners used to create the Top Citizen Scientist Award Program. The goal of the program is to further increase participant engagement and publicly elevate the significant contributions of citizen scientists in hopes others will understand their vital role in moving IBD research forward and be inspired to get […]

The Health eHeart Alliance Cause Groups: A Model for Sustainable, People-centered Engagement

The Health eHeart Alliance (The Alliance) launched cause groups in early 2018 with a primary goal to ensure patients are involved in research work from the outset so it is truly relevant and useful. They started with a Hypertension Cause Group and the Adult Congenital Heart Disease (ACHD) Cause Group as a way for their stakeholders […]

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and […]

Strategies for Involving Stakeholders in Developing Research Questions & Protocols

Online Tools, Apps, and Social Networks Network and Tool Name Utility ABOUT Network Best Practice Sharing Session: ABOUT Network GAP Tools GAP360 is a 7-step patient-centered process that enables stakeholders to submit their own research questions through an online form. Question submissions are then: ·       Assessed via advisory board queries, community surveys, and literature reviews. […]