The Greater Plains Collaborative developed and use these engagement meeting norms as a way to orient and continually guide stakeholder interactions in their community. Use this document to guide the development of meeting norms for your community.
In this toolkit, you will find resources IBD Partners used to create the Top Citizen Scientist Award Program. The goal of the program is to further increase participant engagement and publicly elevate the significant contributions of citizen scientists in hopes others will understand their vital role in moving IBD research forward and be inspired to get […]
This document is an introductory guide for those interested in working with OCHIN and ADVANCE. It describes engagement and recruitment activities and gives points of contact within the network.
This guide shows a request form for working with ADVANCE’s Patient Engagement Panel (PEP). The form also outlines guidelines for working with the group.
The Levels of Engagement show different degrees of involvement of stakeholders into ADVANCE. This graphic gives an idea of how engagement is structured in ADVANCE.
ADVANCE uses this survey to regularly check in on the members of their Patient Engagement Panel. This survey collects information on their satisfaction with the group, goals for work, and other feedback. The survey is one example of a way to collect feedback from stakeholders.
The Health eHeart Alliance (The Alliance) launched cause groups in early 2018 with a primary goal to ensure patients are involved in research work from the outset so it is truly relevant and useful. They started with a Hypertension Cause Group and the Adult Congenital Heart Disease (ACHD) Cause Group as a way for their stakeholders […]
This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study). The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and […]
This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis
Online Tools, Apps, and Social Networks Network and Tool Name Utility ABOUT Network Best Practice Sharing Session: ABOUT Network GAP Tools GAP360 is a 7-step patient-centered process that enables stakeholders to submit their own research questions through an online form. Question submissions are then: · Assessed via advisory board queries, community surveys, and literature reviews. […]