The Informatics team at UNC Chapel Hill’s CTSA used an electronic workflow to recruit participants to the ADAPTABLE Study. Tools used were the Epic EHR (particularly the patient portal, MyChart) and REDCap. These materials will help other institutions wishing to recruit study participants via Epic MyChart and/or bulk email from REDCap. You can download the documentation […]
The resources below include a final report and a concluding presentation from the PPRN EHR extraction pilot project whose objective was to evaluate the effectiveness and value of empowering individual participants to play an active role in making their own clinical data available for research through the use of a mobile app capable of downloading […]
The PCORnet EHR-extraction pilot project is underway with three PPRNs (Interactive Autism Network, NephCure Kidney Network, and Phelan McDermid Syndrome Data Network) to acquire electronic health record (EHR) data from network participants for the purposes of research. This implementation guide outlines the steps and resources necessary for an organization to begin acquiring structured EHR data through […]
Data quality is a common problem in EHR data. This webinar, originally hosted on May 27, 2015, discusses what data quality issues should be prevented when creating CDRNs for comparative effectiveness research. Presented: May 27, 2015 Speaker: Dr. Chunhua Weng, Columbia University
The Southeastern Diabetes Initiative attempted to identify patients at risk for diabetes. This webinar, originally hosted on August 5th, 2015, discusses the study and it’s discoveries using EHR and phenotypes across multiple sites. Presented: August 5, 2015 Speakers: Dr. Joseph Lucas, Health Systems Operations, Information Initiative at Duke University Ben Neely, DCRI Dr. Rachel Richesson, […]
LOINC is a universal coding system for health data. This webinar will give you an introduction to the LOINC system. Presented: January 27, 2016 Speaker: Dr. Daniel J. Vreeman, Indiana University School of Medicine and Regenstrief Institute Inc.
RFD stands for Retrieve Form for Data Capture. This uses Epic and REDCap to integrate EHR data. This webinar discusses RFD and lessons learned from the development process. View this presentation to learn more about it. Presented: October 18, 2015 Speakers: Amy Harris Nordo, DCRI Matt Gardner, DCRI