This resource was created by the IBD Partners (formerly CCFA Partners) Patient Governance Committee and intended to be given to investigators at the beginning of a project to help facilitate an open dialog with the patient collaborator(s). Use this to develop your own principles for effective stakeholder communication. Author(s): IBD Partners Patient Governance Committee Published: November […]
Collaborations across networks are an essential part of PCORnet. This webinar, originally hosted on September 29th, 2015 describes ways to collaborate between CDRNs and PPRNs. If you are interested in establishing such a relationship, please take a look at this session. Speakers: Dr. Russell Rothman, Mid-South CDRN Dr. Jeff Curtis, AR-POWER Dr. Ben Nowell, AR-POWER […]
Ibd Partners (formerly CCFA Partners) PPRN uses this infographic as part of their strategy to recruit new members. Use this to guide the development of your own recruitment infographic, flyer, or poster.
This is the IBD Partners (formerly CCFA Partners) October 2016 e-Newsletter. Use it as a template for your communication and outreach efforts.
This is an example of an email sent to invite IBD Partners (formerly CCFA Partners) to apply to become a member of the Patient Governance Committee. Use this template to draft your own email.
This is a copy of IBD Partners (formerly CCFA Partners) Patient Governance committee by-laws. Use it as an example for your own governance committee.