Tag Archives: best practice sharing session

Best Practice Sharing Session: Engagement in PCORnet 1.0: Results of the Engagement Assessment Project

PCORnet has prioritized engagement as a key function in transforming healthcare research. However, there was little investment in capturing and scientifically assessing engagement activities in PCORnet. The Genetic Alliance Coordinating Center set out to capture, review and publish the resources, best practices, and lessons learned from PCORnet and its networks.

Best Practice Sharing Session: Sourcing, cataloguing, and disseminating research innovations across PCORnet

This Best Practice Sharing Session discusses the process the Research Innovations Workgroup used to identify innovation needs in the network, detailed their use of the Commons to facilitate cross-network collaboration, and showcased the resulting products. Five areas of interested surfaced and the workgroup leveraged the PCORnet Commons as a collaboration platform – encouraging networks to […]

Best Practice Sharing Session: LGBTQ Adaptation of Cognitive Behavioral Therapy (CBT)

The Resilience Against Depression Disparities (RADD) study offers Resources for Services training to partnered agency staff and hopes to determine if there is an added benefit to offering Resiliency Classes (RC) to study participants receiving services at those agencies. The RC are 7 sessions of CBT taught by a non-licensed instructor to participants with low […]

Best Practice Sharing Session: Lessons Learned in ADAPTABLE

This Best Practice Sharing Session originally aired on March 7, 2018. This presentation served to provide information about starting up the ADAPTABLE trial. Lessons learned on recruitment and retention are shared. Speakers: Holly Robertson, PhD, Duke Schuyler Jones, MD, Duke 2018-03-07 PCORnet BPSS_Slides

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2

This presentation, originally recorded on, November 13, 2017, looked at e-consent from several different perspectives. The presentation discussed different technologies used to obtain consent in different contexts. It details different guidelines as well as use of layered consent. Speakers: Dr. Holly Peay, RTI Dr. Erin Rothwell, University of Utah David Borasky, WIRB-Copernicus Group    

Best Practice Sharing Session: Design and Development of an Operational Privacy Protecting Record Linkage Tool

Dr. Kho discussed how to protect and secure data online. He also explained the ongoing work to develop new security features. Speaker: Dr. Abel Kho, CAPriCORN PCORnet_Best_Practices_4_29_15 Presented on April 29, 2015

Best Practice Sharing Session: PROMIS and It’s Place in PCORnet

This presentation gave an overview of how PROMIS can provide reliable, flexible, and responsible treatment options to patients across multiple health domains. Speaker: Dr. David Cella, CAPriCORN PCORI Office Hours seminar_1-12-15_cella Presented on January 15, 2015

Best Practice Sharing Session: Creative Commons; Extending the Value of PCORnet Efforts

This presentation goes over the differences between intellectual property and data, Open Access, attributions, and CC licenses. Speaker: John Wilbanks pcori cc wilbanks ppt Presented on January 26, 2015

Best Practice Sharing Session: Statistical Analyses in Distributed Research Networks

Dr. Toh and Dr. Li gave examples of research conducted within distributed networks with horizontally partitioned data. They then hosted a discussion and spoke about how vertically partitioned data could be useful to PCORnet. Speakers: Dr. Darren Toh, Harvard Medical School/Harvard Pilgrim Health Care Institute Dr. Lingling Li, Harvard Medical School/Harvard Pilgrim Health Care Institute Statistical analyses […]