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FORCE HBOC Research Study Search Tool Webinar

Published by Sue Friedman | Published on March 1, 2018

This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Read more

iConquerMS: MS Minority Research Engagement Survey

Published by Adrianna Evans | Published on February 14, 2018

This presentation discusses the MS Minority Research Engagement Survey, conducted by the iConquerMS PPRN in collaboration with the Accelerated Cure Project. This survey investigated why people belonging to minority groups have lower participation in MS studies. Although work has previously been done related to other diseases, this survey looked at MS research participation specifically. Use this presentation to learn more about the results of their survey or methods to apply to a survey of your own. Read more

Community Engagement Studio Toolkit 2.0

Published by Adrianna Evans | Published on February 14, 2018

The Community Engagement Studio Toolkit is part of a service offered by the Meharrry-Vanderbilt Community Engage Research Core (CERC) stemming from the Vanderbilt Institute for Clinical and Translational Research (VICTR). This toolkit helps increase the capacity of researchers to engage the community in research activities by providing a framework for them to work from. Use this resource to learn more about this method of community engagement or learn new engagement skills. Read more

Research Proposal Intake Guidance & Examples

Published by Joanna Ball | Published on February 13, 2018

  Interactive Autism Network (IAN) IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has resulted in a template for evaluating studies for SPARK Research Match. (updated January 2018)   PRIDEnet The PRIDEnet Participant Advisory Committee (PAC) has developed the The PRIDE Study Ancillary Study Proposal Form to provide researchers and community partners guidance for applying to conduct Ancillary... Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | Published on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more

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