Innovative resources and tools can help you improve the quantity and quality of data used in your study. PCORnet believes that data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders.
Dive deeper with these resources
Check out the REN: Baseline Questionnaire for Caregiver Responders to see an example questionnaire for caregivers.
Recently Uploaded Resources
|PCORnet: EHR Pilot Project Final Report and Presentation||2:44pm | 4/30/2018|
|Rare Epilepsy Network (REN): Online Data Dashboard||9:36am | 3/27/2018|
|PRIDEnet: PCORnet Recommendations for SOGI Data Elements in CDM v3.1||10:40am | 2/6/2018|
|PCORI Methods project, “Privacy-Preserving Analytic and Data-Sharing Methods for Clinical and Patient-Powered Data Networks”||3:26pm | 3/8/2018|
|NephCure Kidney Network: Data Access Committee Standard Operating Procedures||3:38pm | 6/28/2018|
Data Capture, Integration, and Linkage
Tools to help capture, integrate, and link data for clinical research
Resources to assist with data analysis
Examples of data principles and policies to help manage your data
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