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Data

The innovative resources and tools found here can help you improve the quantity and quality of data used for your studies. PCORnet believes data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders. Access pioneering data tools and models now!

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Research

Find innovations that can be applied across the research life cycle - from generating research questions, identifying patients and capturing data, to disseminating results back to participants and the public. Explore these tools and move your research forward!

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Resources

Check out these resources to tap into the wealth of experience and expertise available through PCORnet – or share your own innovative research resources. Search and share now!

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The Health eHeart Alliance Cause Groups: A Model for Sustainable, People-centered Engagement

Published by Joanna Ball | updated on June 28, 2018

The Health eHeart Alliance (The Alliance) launched cause groups in early 2018 with a primary goal to ensure patients are involved in research work from the outset so it is truly relevant and useful. They started with a Hypertension Cause Group and the Adult Congenital Heart Disease (ACHD) Cause Group as a way for their stakeholders to share experiences and get involved in research that is relevant to them. Use the resources in this guide to form and support cause groups for your community. Read more

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on June 28, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

Best Practice Sharing Session: LGBTQ Adaptation of Cognitive Behavioral Therapy (CBT)

Published by Joanna Ball | updated on May 23, 2018

The Resilience Against Depression Disparities (RADD) study offers Resources for Services training to partnered agency staff and hopes to determine if there is an added benefit to offering Resiliency Classes (RC) to study participants receiving services at those agencies. The RC are 7 sessions of CBT taught by a non-licensed instructor to participants with low mood. These were developed by Dr. Jeanne Miranda and adapted for the LGBTQ community through input from community partners and the LGBTQI2-S UsCC (Underserved Cultural Communities) Subcommittee. This subcommittee belongs to the County of Los Angeles – Department of Mental Health (DMH) Program Support Bureau... Read more

ImproveCareNow: Engagement Key Driver Diagram

Published by Jordan Capizola | updated on May 23, 2018

This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis   Read more


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