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Data

The innovative resources and tools found here can help you improve the quantity and quality of data used for your studies. PCORnet believes data networks should follow the principles of efficiency, interoperability, transparency, reproducibility, security, and inclusivity of stakeholders. Access pioneering data tools and models now!

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Research

Find innovations that can be applied across the research life cycle - from generating research questions, identifying patients and capturing data, to disseminating results back to participants and the public. Explore these tools and move your research forward!

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Resources

Check out these resources to tap into the wealth of experience and expertise available through PCORnet – or share your own innovative research resources. Search and share now!

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Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on May 24, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

Best Practice Sharing Session: LGBTQ Adaptation of Cognitive Behavioral Therapy (CBT)

Published by Joanna Ball | updated on May 23, 2018

The Resilience Against Depression Disparities (RADD) study offers Resources for Services training to partnered agency staff and hopes to determine if there is an added benefit to offering Resiliency Classes (RC) to study participants receiving services at those agencies. The RC are 7 sessions of CBT taught by a non-licensed instructor to participants with low mood. These were developed by Dr. Jeanne Miranda and adapted for the LGBTQ community through input from community partners and the LGBTQI2-S UsCC (Underserved Cultural Communities) Subcommittee. This subcommittee belongs to the County of Los Angeles – Department of Mental Health (DMH) Program Support Bureau... Read more

ImproveCareNow: Engagement Key Driver Diagram

Published by Jordan Capizola | updated on May 23, 2018

This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis   Read more

Strategies for Involving Stakeholders in Developing Research Questions & Protocols

Published by Joanna Ball | updated on May 4, 2018

Online Tools, Apps, and Social Networks Network and Tool Name Utility ABOUT Network Best Practice Sharing Session: ABOUT Network GAP Tools GAP360 is a 7-step patient-centered process that enables stakeholders to submit their own research questions through an online form. Question submissions are then: ·       Assessed via advisory board queries, community surveys, and literature reviews. ·       Prioritized by the Steering Committee, Research Work Group and Executive Committee, with recommendations for next steps. From that point, study design considerations are made, a proposal is written and submitted, the study is conducted, and results are published.   Question submissions are shared on... Read more


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