Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a toolkit for researchers and others who want to engage hard-to-reach stakeholders for patient-centered projects, including patient-centered outcomes research (PCOR). The toolkit was developed by the Wisconsin Network for Research Support (WINRS), a patient and community engagement resource based at the University of Wisconsin-Madison School of Nursing. The toolkit includes templates that researchers can adapt for specific projects, including a form to help researchers respectfully contact a community-based organization about collaboration on a research project.
Important Information: HARPS is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. If you use or adapt these materials, please follow the instructions on p. 26 in HARPS for crediting WINRS. Users of the toolkit can contact WINRS for help using and adapting the materials. Note that free registration is required to use any of the toolkits provided within HIPxChange.
To learn more about WINRS, visit:
- WINRS Homepage: https://winrs.nursing.wisc.edu/
- WINRS Publications: https://winrs.nursing.wisc.edu/resources/articles/
- WINRS Blog: https://winrs.nursing.wisc.edu/blog/