Interactive Autism Network (IAN)
IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has resulted in a template for evaluating studies for SPARK Research Match. (updated January 2018)
The PRIDEnet Participant Advisory Committee (PAC) has developed the The PRIDE Study Ancillary Study Proposal Form to provide researchers and community partners guidance for applying to conduct Ancillary Studies. (updated January 2018)
NephCure Kidney Network (NKN): Research Request Form*
NephCure Kidney Network developed a research request form using similar forms on the Commons as a guide. After initial drafting, this form went through several rounds of feedback from their Research Committee and other stakeholder groups. This form can be used to request data or other types of collaboration from NKN or can be used to guide the development of your own research request form.
Research Action for Health Network (REACHnet)
The REACHnet Research Participation & Data Governance Policy informs researchers how to collaborate with their network and also governs REACHnet’s process for determining network and site participation in research projects as well as data sharing approvals. (updated January 2018)