PMS-DN: Registry Insight Monthly Newsletter Sample

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This is a sample of the April 2018 Registry Insight newsletter from the Phelan-McDermid Syndrome Data Network (PMS-DN) The Phelan-McDermid Syndrome Foundation (PMSF) creates and disseminates a monthly newsletter to members. One article in the newsletter is a piece called the Registry Insight which highlights exciting updates related to the network’s registry.


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engagement, newsletter, Outreach and Communications, PMS-DN, Phelan-McDermid Syndrome