PMS-DN: Parent Action Committee Charter

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This charter was developed in partnership by the Phelan-McDermid Syndrome Foundation and their Parent Action Committee (PAC). The charter lays out the roles and responsibilities for members of the committee and the time commitment we expected for patient-centered governance. Use this as guidance when developing a committee charter in your community.

Published: September 6, 2018


engagement, roles and governance, PMS-DN