PCORnet Multi-stakeholder Engagement Special Supplement

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The PCORnet Multistakeholder Engagement Special Issue to Medical Care has been published online and was developed in collaboration with leadership from the PCORnet Phase I Patient and Consumer Engagement Task Force. The goal was to highlight PCORnet Phase I patient and multistakeholder engagement across the PCORnet partner networks.

Manuscripts cover topics such as:

  • novel engagement approaches and methods
  • network recruitment and retention
  • policy development
  • informed consent
  • research topic prioritization

PCORnet partner networks who contributed to this Special Issue include: 

  • ADVANCE
  • AR-PoWER (ArthritisPower)
  • CCFA Partners
  • Greater Plains Collaborative
  • Health eHeart and the ADAPTABLE Team
  • Mid-South CDRN
  • MoodNetwork
  • NYC-CDRN
  • pSCANNER
  • REACHnet

A special thanks also to Sarah Daugherty (Senior Program Officer, PCORI), Jaye Bea Smalley (former Engagement Officer at PCORI), Mark Helfand (OHSU), Kathy Kim (pSCANNER) and Consuelo Wilkins (Mid-South) for their contributions.