PCORnet Governance Materials

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The table below contains an evolving compilation of governance resources and tools from across PCORnet.

Charters and By-laws

IBD Partners: 2016 Patient Governance Council By-laws
PRIDEnet: Participant Advisory Committee Bylaws
PRIDEnet: The PRIDE Study Participant Advisory Committee PAC By-laws
COPD PPRN: Governing Board Charter Template
MS-PPRN: iConquerMS Engagement Committee Charter Approved Signed
MS-PPRN: iConquerMS Governing Board Charter
MS-PPRN: iConquerMS Research Committee Charter
MS-PPRN: iConquerMS Research Committee Charter Approved and Signed
NephCure Kidney Network: Steering Committee Charter
PMS-DN: Parent Action Committee Charter
IAN: Community Advisory Council Charter

Codes of Conduct, Group Norms, and Standard Operating Procedures

Greater Plains Collaborative: Engagement Meeting Norms
MS-PPRN: iConquerMS Engagement Committee Code of Conduct
MS-PPRN: iConquerMS Governing Board Code of Conduct
MS-PPRN: iConquerMS Research Committee Code of Conduct
NephCure Kidney Network: Research Committee Standard Operating Procedure
PARTNERS: Research Collaboration Expectations

Group, Position, and Role Descriptions

AR-PoWER: 2016 Patient Governor Group Position Description
IAN: Community Advisory Council Summary

Membership Applications and Interview Guidance

AR-PoWER: Patient Governor Group Application
IAN: Community Advisory Council Application
IBD Partners: August 2015 Patient Governance Committee Application Example
AR-PoWER: 2016 Patient Governor Group Interview Template

Plans, Policies and Guidance

Alzheimer’s, Dementia, Patient & Caregiver Powered Research Network (AD-PCPRN): Governance Policy
REACHnet: Engagement Policy
REACHnet: Research Participation and Data Governance Policy
ADVANCE: Patient Engagement Panel Guidebook
PEDSnet: Governance
PORTAL: August 2015 Governance Document
Obesity Antibiotics Study: Governance Plan
PaTH Network Protocol Review Committee (PNPRC)
PRIDEnet: The PRIDE Study Ancillary Study Participant Advisory Committee PAC Review
PRIDEnet: The PRIDE Study Ancillary Study Research Advisory Committee RAC Review
The Greater Plains Collaborative: Governance Materials (Public Wiki)

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engagement, governance, policies, roles and governance