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Home Resources PCORnet Data Sharing Materials
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PCORnet Data Sharing Materials

Categories: Data, Operations

The table below contains an evolving compilation of data sharing resources and tools from across PCORnet.

Analytic Plans and Other Resources

Obesity Antibiotics Study: Analytic Plan
PCORnet Bariatric Study: Analytic Plan
PEDSnet: Data Resources

Data Coding, Privacy, and Safety

Obesity Antibiotics Study: Data Safety Documentation
PCORnet Cross-Network Code Repository
Protecting Privacy in the PCORnet Distributed Research Network

Data Use Agreements/Sharing Policies

ADVANCE: Data Use and Sharing Policy Example
ADVANCE: Policy Transparency of Patient Data Use Example
CENA: Data Use Acknowledgement Template
COPD PPRN: Privacy Policy and Security Measures for Patient Health Data
NephCure Kidney Network: Data Use Agreement
NephCure Kidney Network: External Data Sharing Policy
PCORI Methods project: Privacy-Preserving Analytic and Data-Sharing Methods for Clinical and Patient-Powered Data Networks
PCORnet Data Sharing Agreement (DSA) 1.0
PCORnet Data Sharing Agreement (DSA) 2.0
REACHnet: Research Participation and Data Governance Policy

Tags:

data, data sharing agreement, data sharing, privacy, operations

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