All Trainings and Presentations Resources

Best Practice Sharing Session: LGBTQ Adaptation of Cognitive Behavioral Therapy (CBT)

Published by Joanna Ball | updated on May 23, 2018

The Resilience Against Depression Disparities (RADD) study offers Resources for Services training to partnered agency staff and hopes to determine if there is an added benefit to offering Resiliency Classes (RC) to study participants receiving services at those agencies. The RC are 7 sessions of CBT taught by a non-licensed instructor to participants with low mood. These were developed by Dr. Jeanne Miranda and adapted for the LGBTQ community through input from community partners and the LGBTQI2-S UsCC (Underserved Cultural Communities) Subcommittee. This subcommittee belongs to the County of Los Angeles – Department of Mental Health (DMH) Program Support Bureau... Read more

ABOUT Network: Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool

Published by Sue Friedman | updated on June 27, 2018

This slide deck provides an overview of how and why the ABOUT Network and Facing Our Risk of Cancer Empowered (FORCE) developed the Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool for helping match HBOC patients to prevention, detection, treatment and quality of life studies.   Read more

REACHnet: Accelerating Clinical Knowledge Generation and Use

Published by Joanna Ball | updated on April 10, 2018

Tom Carton (REACHnet PI), discusses the process REACHnet used to convene a multi-stakeholder group to identify research priorities among health system leaders in this January 2016 presentation given at the National Academy of Medicine-PCORI meeting, Accelerating Clinical Knowledge Generation and Use. This work was funded by PCORI Health Systems Demonstration Project: Phase 1. Read more

ABOUT Network: FORCE HBOC Research Study Search Tool Webinar

Published by Sue Friedman | updated on June 27, 2018

This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Read more

MS-PPRN: MS Minority Research Engagement Survey

Published by Adrianna Evans | updated on June 28, 2018

This presentation discusses the MS Minority Research Engagement Survey, conducted by the iConquerMS PPRN in collaboration with the Accelerated Cure Project. This survey investigated why people belonging to minority groups have lower participation in MS studies. Although work has previously been done related to other diseases, this survey looked at MS research participation specifically. Use this presentation to learn more about the results of their survey or methods to apply to a survey of your own. Read more

PRIDEnet: Clinician-Patient Role Play Scenarios

Published by Jordan Capizola | updated on February 6, 2018

“Role Play Scenarios” are training materials developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on their clinical expertise and practice with gender and sexual minorities, and likely informed by additional research. Read more

Mid-South CDRN: Clinical Data Research Networks (CDRN) 101

Published by Adrianna Evans | updated on January 24, 2018

This presentation provides an overview of CDRNs and how they use health data. This presentation can be used to learn more about CDRNs, their projects, and how they use their data. The presentation is used for in-person informational sessions with researchers and research staff at University of North Carolina at Chapel Hill (part of Mid-South CDRN) and: Covers basic concepts of how health data is used for research and what CDRNs do Is designed to broadly talk about CDRNs Prior to each session  registrants receive survey so presenters can better prepare to address questions during the presentation. Read more

NIH: Clinical Trial Requirements for Grants and Contracts

Published by Joanna Ball | updated on August 30, 2017

From the National Institutes of Health Website: "NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research." Read more

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4=""][/video] Be sure to join the ongoing discussion about... Read more