All Templates and Tools Resources

IBD Partners’ Top Citizen Scientist Award Toolkit: A model for meaningful engagement

Published by Joanna Ball | updated on August 1, 2018

In this toolkit, you will find resources IBD Partners used to create the Top Citizen Scientist Award Program. The goal of the program is to further increase participant engagement and publicly elevate the significant contributions of citizen scientists in hopes others will understand their vital role in moving IBD research forward and be inspired to get more involved. We encourage you to use these resources to develop a similar program in your community. Read more

The Health eHeart Alliance Cause Groups: A Model for Sustainable, People-centered Engagement

Published by Joanna Ball | updated on June 28, 2018

The Health eHeart Alliance (The Alliance) launched cause groups in early 2018 with a primary goal to ensure patients are involved in research work from the outset so it is truly relevant and useful. They started with a Hypertension Cause Group and the Adult Congenital Heart Disease (ACHD) Cause Group as a way for their stakeholders to share experiences and get involved in research that is relevant to them. Use the resources in this guide to form and support cause groups for your community. Read more

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on June 28, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

Strategies for Involving Stakeholders in Developing Research Questions & Protocols

Published by Joanna Ball | updated on May 4, 2018

Online Tools, Apps, and Social Networks Network and Tool Name Utility ABOUT Network Best Practice Sharing Session: ABOUT Network GAP Tools GAP360 is a 7-step patient-centered process that enables stakeholders to submit their own research questions through an online form. Question submissions are then: ·       Assessed via advisory board queries, community surveys, and literature reviews. ·       Prioritized by the Steering Committee, Research Work Group and Executive Committee, with recommendations for next steps. From that point, study design considerations are made, a proposal is written and submitted, the study is conducted, and results are published.   Question submissions are shared on... Read more

Mid-South CDRN: Trial Accrual Tool and Instructions

Published by Jordan Capizola | updated on March 30, 2018

The purpose of this tool is to be able to create targets and track accruals of human participants for clinical trials over a specified period of time. You may use this resource for your own research projects; instructions for use are posted below and are also embedded in the template. Accrual graph instructions (.doc) Trial Accrual Tool Template (.xls) Read more

NephCure Kidney Network: Research Request Form

Published by Adrianna Evans | updated on June 28, 2018

NephCure Kidney Network developed a research request form using similar forms on the Commons as a guide After initial drafting, this form went through several rounds of feedback from their Research Committee and other stakeholder groups. This form can be used to request data or other types of collaboration from NKN or can be used to guide the development of your own research request form. Read more

Rare Epilepsy Network (REN): Online Data Dashboard

Published by Adrianna Evans | updated on March 27, 2018

The Rare Epilepsy Network (REN) has developed a website exclusively for visualization of their baseline data. This website shows a number of different visual representations of their data. These visual representations can be changed by clicking on different variables. This tool can be used to better understand the REN study population. Read more

Community Engagement Studio Toolkit 2.0

Published by Adrianna Evans | updated on March 28, 2018

The Community Engagement Studio Toolkit is part of a service offered by the Meharrry-Vanderbilt Community Engage Research Core (CERC) stemming from the Vanderbilt Institute for Clinical and Translational Research (VICTR). This toolkit helps increase the capacity of researchers to engage the community in research activities by providing a framework for them to work from. Use this resource to learn more about this method of community engagement or learn new engagement skills. Read more

Research Proposal Intake Guidance & Examples

Published by Joanna Ball | updated on June 28, 2018

  Interactive Autism Network (IAN) IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has resulted in a template for evaluating studies for SPARK Research Match. (updated January 2018) PRIDEnet The PRIDEnet Participant Advisory Committee (PAC) has developed the The PRIDE Study Ancillary Study Proposal Form to provide researchers and community partners guidance for applying to conduct Ancillary Studies.... Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | updated on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more