All Stakeholder Engagement Resources

Wisconsin Network for Research Support (WINRS): Hard-to-Reach Patient Stakeholders: An Engagement Guide

Published by Joanna Ball | updated on November 13, 2017

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a toolkit for researchers and others who want to engage hard-to-reach stakeholders for patient-centered projects, including patient-centered outcomes research (PCOR). The toolkit was developed by the Wisconsin Network for Research Support (WINRS), a patient and community engagement resource based at the University of Wisconsin-Madison School of Nursing. The toolkit includes templates that researchers can adapt for specific projects, including a form to help researchers respectfully contact a community-based organization about collaboration on a research project. Important Information: HARPS is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. If you use or adapt... Read more

Obesity Antibiotics Study: Advancing the Science of Community Engaged Research

Published by Joanna Ball | updated on November 13, 2017

The engagement leadership team of the PCORnet Antibiotics Study surveyed the Executive Antibiotics Stakeholder Advisory Group (EASAG) regarding their participation and engagement in the study. The study explores the effects of antibiotic use during the first two years of life on BMI at ages 5 and 10. The goals of this survey were to determine stakeholder satisfaction; inform the study’s engagement process, and document lessons learned to benefit future studies. Its findings will be used to inform stakeholder inclusion in scientific studies, sustain engagement, and enhance future PCORnet stakeholder engagement. This poster was presented at the Advancing the Science of... Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more

PCORnet Bariatrics Study Engagement Plan

Published by Joanna Ball | updated on November 13, 2017

View the PCORnet Bariatric Study's Engagement Plan to learn about the study's engagement efforts and inform the development of your own comprehensive engagement plan. Read more

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Improving Collaboration among Health Communication, Health Education, and Health Literacy

Published by Joanna Ball | updated on November 13, 2017

Authors: Marin P. Allen, Elaine Auld, Robert Logan, J. Henry Montes, and Stacey Rosen This discussion paper published by the National Academy of Medicine on July 10, 2017, provides a call-to-action for health communication, health education, and health literacy practitioners to work together to enhance human health, improve health outcomes, and reduce health disparities. Read more

CCFA Partners: Citizen Scientist Infographic

Published by Joanna Ball | updated on November 13, 2017

CCFA Partners PPRN uses this infographic as part of their strategy to recruit new members. Use this to guide the development of your own recruitment infographic, flyer, or poster.  Read more

Clinician Engagement for Continuous Learning

Published by Joanna Ball | updated on November 13, 2017

This discussion paper was published on March 6, 2017, in the National Academy of Medicine's NAM Perspectives. The writers address how clinicians can advance and benefit from a continuously learning health system and also describe: The potential and importance of engaging clinicians in knowledge generation The challenges and strategies for aligning priorities between clinicians and researchers The barriers to data collection at the point of care   Read more

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4="https://pcornetcommons.org/wp-content/uploads/2017/06/2017-06-08-PCORnet-BPSS.mp4"][/video] Be sure to join the ongoing discussion about... Read more