All Stakeholder Engagement Resources

MyApnea: Women’s Sleep Apnea Toolkit and Sleep Guide

Published by Joanna Ball | updated on January 30, 2018

The resources below aim to address the unique challenges women face in getting healthy sleep. The toolkit was created by three MyApnea patients, Dr. Susan Redline, and the Society for Women’s Health Research (SWHR) and the sleep guide was developed by SWHR. Download these resources here then learn more about them in a blog post written by a MyApnea patient collaborator. Women's Sleep Apnea Toolkit Developed by MyApnea patients, Dr. Susan Redline, and SWHR Women & Sleep: A Guide for Better Health  Developed by SWHR Read more

Bringing Together Stakeholders for Meaningful Dialogue: A Step-By-Step Guide to Hosting a Learning Lounge Session

Published by Joanna Ball | updated on January 29, 2018

This toolkit details the process followed – from the proposal stage to event wrap-up and next steps – to set up the Learning Lounge and includes helpful sample materials. We hope you find the information useful for setting up your own live forum event in your community. Read more

ImproveCareNow: Tri-Fold Brochure Sample

Published by Joanna Ball | updated on January 24, 2018

Download the ImproveCareNow (ICN) tri-fold brochure to use an example when crafting your own outreach and communications materials for stakeholders.   Read more

ImproveCareNow: Blog Post Sample

Published by Joanna Ball | updated on January 24, 2018

Download the ImproveCareNow (ICN) blog sample to use as an example when crafting blog content for your stakeholder groups. Published: January 2018 Read more

PCORnet Clinical Engagement Value Proposition

Published by Joanna Ball | updated on December 20, 2017

This resource - developed by the PCORnet Engagement Committee - provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described or adopted. As stated in the document, "Fully engaging practicing clinicians in research and dissemination of findings accelerates patient engagement and study recruitment, increases quality of research and care, especially integrating results into clinical practice. For all of these reasons, it is essential to operationalize this value proposition and identify and resource solutions." Developed by: The PCORnet Engagement Committee Published: December 2017  Read more

IBD Partners: Principles for Patient Collaboration V1

Published by Joanna Ball | updated on January 3, 2018

This resource was created by the IDB Partners Patient Governance Committee and intended to be given to investigators at the beginning of a project to help facilitate an open dialog with the patient collaborator(s). Use this to develop your own principles for effective stakeholder communication. Author(s): IDB Partners Patient Governance Committee Published: November 1, 2017 Read more

Best Practice Sharing Session: Clinician Engagement

Published by Adrianna Evans | updated on November 13, 2017

Engaging clinicians in research comes with many challenges, but there are also many key solutions. This presentation, hosted both on May 20th and May 21st, 2015 outlines these aspects and steps to engaging clinicians throughout the research process. Speakers: Dr. Robert Mentz, Duke University Dr. Matthew Roe, Duke University PCORnet Clinician Engagement Read more

Best Practice Sharing Session: Engagement of Multiple Stakeholder Groups

Published by Adrianna Evans | updated on November 13, 2017

LaCDRN discusses their approaches to engaging multiple stakeholder groups. In this webinar, originally hosted on June 23, 2015, you can learn about LaCDRN's structure and how they integrate the voices of different groups within that structure. Speakers: Dr. Rebekah Angrove, LaCDRN Sarah Pallin, LaCDRN [video width="1024" height="768" mp4=""][/video] Read more

Best Practice Sharing Session: CDRN – PPRN Collaborations

Published by Adrianna Evans | updated on November 13, 2017

Collaborations across networks are an essential part of PCORnet. This webinar, originally hosted on September 29th, 2015 describes ways to collaborate between CDRNs and PPRNs. If you are interested in establishing such a relationship, please take a look at this session. Speakers: Dr. Russell Rothman, Mid-South CDRN Dr. Jeff Curtis, AR-POWER Dr. Ben Nowell, AR-POWER Dr. Michael Kappelman, CCFA PPRN   CDRN PPRN Collaborations _Final_DML Read more

Collecting Community Stories: The MyPaTH Story Booth Toolkit

Published by Joanna Ball | updated on November 13, 2017

This toolkit is designed to help you collect rich and meaningful stories from your community. The MyPaTH’s Story Booth materials in this toolkit include sample flyers, brochures, and interview prompts that can be adapted to your community with approval from the MyPaTH Story Booth IRB. Begin collecting and archiving your community’s stories in partnership with the MyPaTH Story Booth team! Want to learn more about the Story Booth Project? Visit the MyPaTH Story Booth website Listen to the PCORnet Best Practice Sharing Session about the MyPath Story Booth Published October 2017 Read more