All Research Resources

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | updated on April 10, 2018

ABOUT Network’s GAP360  is a 7-step process for patient-centered research. In this Best Practice Sharing Session, Dr. Sue Friedman describes the GAP360 process and discusses how hereditary breast and ovarian cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

REACHnet: An overview and implications for clinical research

Published by Joanna Ball | updated on November 13, 2017

This report provides readers with a closer look at Research Action for Health Network's (REACHnet) framework, functions, and goals and how their work will impact the clinical research space. Read more

Quality by Design Principles for PCORnet Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

This document was prepared by the Clinical Trials Task Force and adapted from a project conducted by the Clinical Trials Transformation Initiative. The content of the document is meant to promote proactive, cross-functional discussions and critical thinking as you begin trial development. Read more

Critical Considerations for Researchers Working with Health Systems

Published by Joanna Ball | updated on November 13, 2017

The linked document was developed by the Health Systems Interactions and Sustainability Task Force and highlights critical considerations for researchers who are working with health systems. The document gives high-level guidance on key topics and provides example materials that you can use for your study. Critical Considerations for Researchers Working with Health Systems Read more

Biorepository Task Force Resources

Published by Joanna Ball | updated on November 13, 2017

The documents linked below provide guidance recommendations and strategies for PCORnet biobank sustainability. They are products of the Biorepository Task Force. Biobank Sustainability Recommendations (.pdf) Biorepositories Task Force Informed Consent Guidance (.doc) Read more

Knowledge Repository for Pragmatic Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

A product of the NIH Collaboratory, the Knowledge Repository provides you with access to helpful documents and resources for conducting pragmatic clinical trials. Follow the link to access the tools.   Read more

Writing for the Clinical Research Setting

Published by Joanna Ball | updated on November 13, 2017

View a collection of webinars presented by Jonathan McCall, MS, the Managing Editor for Rethinking Clinical Trials and a senior science writer and editor for the Duke Clinical Research Institute. Each webinar provides an introduction to a particular aspect of writing for the clinical research space including: Writing peer-reviewed articles White papers Guidance documents Managing the writing and publication process Read more

Rethinking Clinical Trials (R): A Living Textbook of Pragmatic Clinical Trials

Published by Joanna Ball | updated on November 13, 2017

NIH Collaboratory’s Rethinking Clinical Trials: A Living Textbook of Pragmatic Clinical Trials is a resource that provides information about how to understand, design, conduct, analyze & disseminate pragmatic clinical trials (PCTs). If you use materials from the Living Textbook, guidance on proper citation can be found here: https://sites.duke.edu/rethinkingclinicaltrials/how-to-cite/   Read more

PCORnet Publication Guidance Document

Published by Joanna Ball | updated on November 7, 2017

This document was created by the Research Committee Publications Working Group and provides recommendations for authorship, manuscript concepts, writing teams, review and approval process, acknowledgments, and resolution of disputes. The document also includes appendices which may be modified for your purposes.   Read more

IAN: Subject Recruitment Application

Published by Jordan Capizola | updated on November 7, 2017

This is the application IAN uses to recruit subjects for its studies. Use it as an example for how to make your own applications. Read more