All Research Resources

PEDSnet Research Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's research resources. Here you can find resources to learn more about PEDSnet's IRB, agreements, forms, PI responsibilities, site surveys, and publications. To access all of PEDSnet's resources, please go to https://pedsnet.org/resources/. Read more

PEDSnet IRB/Regulatory Resources

Published by Adrianna Evans | updated on November 13, 2017

Click here to find all of PEDSnet's resources surrounding IRB or regulatory policies hosted on their website. Learn more about their policies and programs surrounding their Institutional Review Board. There are resources on human subjects protection, non-human subjects research, site surveys, PI responsibilities, board authorization, and more.   Find all of PEDSnet's resources at https://pedsnet.org/resources/. Read more

Trial Innovations Network: Clinical Trials Toolkits

Published by Joanna Ball | updated on September 6, 2017

The Trial Innovation Network is hoping to curate self-service tools and resources that researchers can use at any stage of their projects. Currently, The Recruitment and Retention Toolkit is available. Additional toolkits will become available as the Trial Innovation Network evolves and develops. Read more

NIH: Clinical Trial Requirements for Grants and Contracts

Published by Joanna Ball | updated on August 30, 2017

From the National Institutes of Health Website: "NIH is launching a series of initiatives that are rolling out in 2017-2018 to enhance the accountability and transparency of clinical research. These initiatives target key points along the whole clinical trial lifecycle from concept to results reporting. Learn more about these changes and how they will affect your research." Read more

GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

Published by Joanna Ball | updated on November 13, 2017

This open access article was published in the British Medical Journal on 2 August 2017: "This paper describes the development of the GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence." Read more

Eureka Digital Research Platform

Published by Joanna Ball | updated on November 13, 2017

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, university or other non-profit investigators, industry investigators or others. Read more

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on January 11, 2018

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

PCORnet Resources and Environment (for use in grant applications)

Published by Joanna Ball | updated on November 13, 2017

This template text was composed for PCORnet investigators and collaborators of PCORnet to use in grant applications to describe the resources available and environment of PCORnet. Details of the PCORnet Distributed Research Network (DRN) structure, data infrastructure and security, and services and use cases are described. Read more

Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on November 13, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more