All Participant Identification and Recruitment & research Resources

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Best Practice Sharing Session: Telemedicine for remote electronic informed consent

Published by Adrianna Evans | updated on November 13, 2017

This presentation, originally hosted on May 12, 2015, introduces doxy.me. This platform can be used to obtain informed consent online, from a remote location. Speakers: Dr. Brandon Welch   BPSS Telemedicine for Remote Electronic Informed consent Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on January 10, 2018

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Eureka Digital Research Platform

Published by Joanna Ball | updated on November 13, 2017

This resource provides background information about the Eureka Digital Research Platform developed by the Health eHeart Alliance. Eureka was built by Health eHeart Alliance researchers from the University of California San Francisco and sponsored by the NIH. The platform is available to anyone who wants to conduct medical or health-related human subject-based research, including citizen-scientists, NIH investigators, university or other non-profit investigators, industry investigators or others. Read more

Rare Diseases Task Force Guidance Document

Published by Joanna Ball | updated on November 13, 2017

This guidance document is intended for PCORnet-affiliated researchers who are planning or implementing recruitment and retention activities for PCORnet rare disease research cohorts. The document was collectively written and edited by the inaugural members of the PCORnet Rare Diseases Task Force (RDTF). The document was published May 2015. Read more