All Research Resources

Best Practice Sharing Session: ADAPTABLE Trial

Published by Jordan Capizola | updated on November 13, 2017

This office hours call gave others in PCORnet a chance to learn what the ADAPTABLE Study was, what progress had been made, and what the next steps were. Speaker: Ty Rorick, DCRI ADAPTABLE Inclusion ADAPTABLE 9FEB15 Presented on April 9, 2015 Read more

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

Published by Jordan Capizola | updated on November 13, 2017

This presentation helped answer the question, "How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?" Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices Presentation Presented on May 6, 2015 Read more

Best Practice Sharing Session: Privacy Protecting Record Linkage Tool

Published by Adrianna Evans | updated on November 13, 2017

Protecting the privacy of patients while using their medical records is an important issue in today's research world. This webinar, originally hosted on April 29th, 2015, discusses the design and development of an operational privacy protecting record linkage tool. Speakers: Dr.Abel Ko, CAPriCORN PCORnet BPSS Privacy Protecting Record Linkage tool. pdf Read more

Best Practice Sharing Session: Telemedicine for remote electronic informed consent

Published by Adrianna Evans | updated on November 13, 2017

This presentation, originally hosted on May 12, 2015, introduces doxy.me. This platform can be used to obtain informed consent online, from a remote location. Speakers: Dr. Brandon Welch   BPSS Telemedicine for Remote Electronic Informed consent Read more

Best Practice Sharing Session: Adventures in EHR Computable Phenotypes

Published by Adrianna Evans | updated on November 13, 2017

The Southeastern Diabetes Initiative attempted to identify patients at risk for diabetes. This webinar, originally hosted on August 5th, 2015, discusses the study and it's discoveries using EHR and phenotypes across multiple sites. Speakers: Dr. Joseph Lucas, Health Systems Operations, Information Initiative at Duke University Ben Neely, DCRI Dr. Rachel Richesson, Duke University School of Nursing Shelley Rusincovitch, Applied Informatics and Architecture BPSS Adventures in EHR Read more

Best Practice Sharing Session: Streamlining IRB Review of Multisite Studies

Published by Adrianna Evans | updated on November 13, 2017

IRBShare is a National IRB Reliance Model. This webinar, originally hosted on August 18, 2015, discusses IRBShare use and some lessons learned. This presentation would be useful to those interested in learning more about a system that may speed up multistudy start dates. Speakers: Emily Sheffer, Vanderbilt University Medical Center [video width="1024" height="768" mp4="https://pcornetcommons.org/wp-content/uploads/2017/10/BPSS-IRB-Multisite-Studies.mp4"][/video] Read more

PRIDEnet: Recommendations for Research Dissemination

Published by Joanna Ball | updated on November 13, 2017

The dissemination recommendations were developed in partnership with the Center for AIDS Prevention Studies (CAPS) Community Advisory Board (CAB) drawing from their own experiences and from interviews with researchers. Published Spring 2013 Read more

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 1. PCORnet Case Studies

Published by Joanna Ball | updated on January 10, 2018

The PCORnet Tools for e-consent workgroup is a collaborative space fostering innovation among those who are currently implementing or seeking to develop tools and strategies for obtaining electronic informed consent. This webinar - hosted on October 23, 2017 -  is the first in a two-part series and highlights real-world experiences implementing electronic consent among several PCORnet networks. This is an opportunity to interact with colleagues and learn about the innovative work being done in electronic consent. Speakers: Holly Robertson, Duke Clinical Research Institute (DCRI) Tom Carton, Louisiana Public Health Institute and REACHnet Colleen Lawrence, Vanderbilt Institute for Clinical and Translational... Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on January 10, 2018

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

Published by Joanna Ball | updated on November 13, 2017

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community provides opportunities for interaction within and outside of PCORnet. Dr. Tom Carton, Chief Development Officer for the Louisiana Public Health Institute and Principal Investigator of REACHnet and Joanna Ball, Digital Community Manager for PCORnet Commons, show users can leverage the PCORnet Commons to turn their innovative ideas into tangible solutions and discussed the potential for using the Commons to further facilitate collaborations between PCORnet and NCATS (and beyond). PCORnet BPSS... Read more