All Trial Management and Retention & research Resources

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Research Proposal Intake Guidance & Examples

Published by Joanna Ball | updated on February 13, 2018

  Interactive Autism Network (IAN) IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has resulted in a template for evaluating studies for SPARK Research Match. (updated January 2018)   PRIDEnet The PRIDEnet Participant Advisory Committee (PAC) has developed the The PRIDE Study Ancillary Study Proposal Form to provide researchers and community partners guidance for applying to conduct Ancillary... Read more

PCORnet Obesity Demo Projects: Cycles 1-5 Evaluation Survey Questions

Published by Joanna Ball | updated on January 3, 2018

This resource contains the PCORnet Obesity Demo Projects [Antibiotics Study (ABX) and the PCORnet Bariatric Study (PBS)] evaluation survey questions from interim evaluation cycles 1-5. The evaluation activities for the Obesity Demo Projects focused on assessment of overall network functionality and PCORnet infrastructure support of large-scale observational research. Study-specific language has been removed and the format standardized in an effort to allow you to adapt the surveys for your use. Developed by: Brie Purcell & John Holmes Last updated: November 2017 Read more

SMART IRB Toolkit V1

Published by Joanna Ball | updated on December 19, 2017

This SMART IRB toolkit provides templates, guides, and best practices for institutions that would like to join SMART IRB or use it for a study. The toolkit chronologically outlines the necessary pieces around joining and using SMART IRB and provides support for both reviewing IRBs and relying institutions. Please reach out to Tamara Wurst (@tamara-wurst) if you have any questions or feedback for the toolkit. Curated by: Tamara Wurst and Amy Franklin Last Updated: November 13, 2017 Read more

Best Practice Sharing Session: ADAPTABLE Trial

Published by Jordan Capizola | updated on November 13, 2017

This office hours call gave others in PCORnet a chance to learn what the ADAPTABLE Study was, what progress had been made, and what the next steps were. Speaker: Ty Rorick, DCRI ADAPTABLE Inclusion ADAPTABLE 9FEB15 Presented on April 9, 2015 Read more