All Participant Identification and Recruitment & research Resources

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ABOUT Network: Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool

Published by Sue Friedman | updated on June 27, 2018

This slide deck provides an overview of how and why the ABOUT Network and Facing Our Risk of Cancer Empowered (FORCE) developed the Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool for helping match HBOC patients to prevention, detection, treatment and quality of life studies.   Read more

Best Practice Sharing Session: Lessons Learned in ADAPTABLE

Published by Adrianna Evans | updated on March 27, 2018

This Best Practice Sharing Session originally aired on March 7, 2018. This presentation served to provide information about starting up the ADAPTABLE trial. Lessons learned on recruitment and retention are shared. Speakers: Holly Robertson, PhD, Duke Schuyler Jones, MD, Duke [video width="320" height="240" mp4="https://pcornetcommons.org/wp-content/uploads/2018/03/2018-03-07-PCORnet-BPSS_Recording-2.mp4"][/video] 2018-03-07 PCORnet BPSS_Slides Read more

ABOUT Network: FORCE HBOC Research Study Search Tool Webinar

Published by Sue Friedman | updated on June 27, 2018

This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Read more

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | updated on February 6, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more