All Participant Identification and Recruitment & research Resources

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FORCE HBOC Research Study Search Tool Webinar

Published by Sue Friedman | updated on March 1, 2018

This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Read more

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | updated on February 6, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more

PRIDEnet: The PRIDE Study Ancillary Study Proposal Form

Published by Jordan Capizola | updated on February 6, 2018

“The PRIDE Study Ancillary Study Proposal Form” is the update version of our Topic Specific Study application for researchers to complete. It was developed by our Research Advisory Committee, based on clinical and research expertise, with input from our Participant Advisory Committee.   Read more

Mid-South CDRN: Clinical Trials Recruitment Graphic Tool

Published by Adrianna Evans | updated on February 5, 2018

This paired spreadsheet and instruction set provides a template and explanation of how to create a graphic representation of recruitment of participants over time. This tool can be used to understand recruitment or "accrual", as the tool refers to it, in reports or develop ones of your own. Instructions: Accrual graph instructions- generic for sharing Spreadsheet: Template Trial Accrual Tool Template testing. Read more