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Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on June 28, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | updated on February 6, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more

PRIDEnet: Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators

Published by Jordan Capizola | updated on February 1, 2018

"Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators" is a refereed journal publication written in collaboration by PRIDEnet PI, Dr. Mitchell Lunn (@mitchlunn) and others. It references  The PRIDE Study and PRIDEnet's relationship with PCORI. Published: 2017 LGBT Health,  Volume 4, Number 4 Authors: Mitchell R. Lunn, MD, MAS,1–3 Wanjun Cui, PhD, MS,4 Matthew M. Zack, MD, MPH,4 William W. Thompson, PhD,5 Michael B. Blank, PhD,6–8 and Baligh R. Yehia, MD, MPP, MSc9,10 DOI: 10.1089/lgbt.2016.0087   Read more

PRIDEnet: Assessing Sexual Orientation and Gender Identity for Research

Published by Jordan Capizola | updated on February 6, 2018

“Assessing Sexual Orientation and Gender Identity for Research” was developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on clinical and research expertise, and was informed by participant data in our pilot research (~18,000 enrolled participants). Read more