All Participant Identification and Recruitment Resources

ABOUT Network: Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool webinar

Published by Sue Friedman | updated on May 16, 2018

This document provides an overview of how and why the ABOUT Network and FORCE developed the Hereditary Breast and Ovarian Cancer (HBOC) Research Study Search Tool for helping match HBOC patients to prevention, detection, treatment and quality of life studies.   Read more

Best Practice Sharing Session: Lessons Learned in ADAPTABLE

Published by Adrianna Evans | updated on March 27, 2018

This Best Practice Sharing Session originally aired on March 7, 2018. This presentation served to provide information about starting up the ADAPTABLE trial. Lessons learned on recruitment and retention are shared. Speakers: Holly Robertson, PhD, Duke Schuyler Jones, MD, Duke [video width="320" height="240" mp4="https://pcornetcommons.org/wp-content/uploads/2018/03/2018-03-07-PCORnet-BPSS_Recording-2.mp4"][/video] 2018-03-07 PCORnet BPSS_Slides Read more

FORCE HBOC Research Study Search Tool Webinar

Published by Sue Friedman | updated on March 27, 2018

This webinar is a how-to guide for patients to use Facing Our Risk of Cancer Empowered (FORCE) hereditary cancer research study search tool. The tool matches patients with an inherited mutation to prevention, detection, quality of life and other research studies enrolling patients like them. This is a direct-to-consumer research matching strategy. Read more

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | updated on February 6, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more

PRIDEnet: The PRIDE Study Ancillary Study Proposal Form

Published by Jordan Capizola | updated on February 6, 2018

“The PRIDE Study Ancillary Study Proposal Form” is the update version of our Topic Specific Study application for researchers to complete. It was developed by our Research Advisory Committee, based on clinical and research expertise, with input from our Participant Advisory Committee.   Read more

Mid-South CDRN: Clinical Trials Recruitment Graphic Tool

Published by Adrianna Evans | updated on February 5, 2018

This paired spreadsheet and instruction set provides a template and explanation of how to create a graphic representation of recruitment of participants over time. This tool can be used to understand recruitment or "accrual", as the tool refers to it, in reports or develop ones of your own. Instructions: Accrual graph instructions- generic for sharing Spreadsheet: Template Trial Accrual Tool Template testing. Read more

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2

Published by Adrianna Evans | updated on January 10, 2018

This presentation, originally recorded on, November 13, 2017, looked at e-consent from several different perspectives. The presentation discussed different technologies used to obtain consent in different contexts. It details different guidelines as well as use of layered consent. Speakers: Dr. Holly Peay, RTI Dr. Erin Rothwell, University of Utah David Borasky, WIRB-Copernicus Group   [video width="1024" height="768" mp4="https://pcornetcommons.org/wp-content/uploads/2017/11/2017-11-13-PCORnet-BPSS_Recording.mp4"][/video]   Read more

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

Published by Jordan Capizola | updated on November 13, 2017

This presentation helped answer the question, "How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?" Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices Presentation Presented on May 6, 2015 Read more

Best Practice Sharing Session: Telemedicine for remote electronic informed consent

Published by Adrianna Evans | updated on November 13, 2017

This presentation, originally hosted on May 12, 2015, introduces doxy.me. This platform can be used to obtain informed consent online, from a remote location. Speakers: Dr. Brandon Welch   BPSS Telemedicine for Remote Electronic Informed consent Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | updated on January 10, 2018

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more