All Outreach and Communications Resources

PCORnet Bariatric Study: Smart Patients Dissemination Packet

Published by Adrianna Evans | updated on November 13, 2017

View the PCORnet Bariatric Study's Dissemination packet to learn about how they engaged providers and patients. Read more

PCORnet Bariatrics Study Engagement Plan

Published by Joanna Ball | updated on November 13, 2017

View the PCORnet Bariatric Study's Engagement Plan to learn about the study's engagement efforts and inform the development of your own comprehensive engagement plan. Read more

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Improving Collaboration among Health Communication, Health Education, and Health Literacy

Published by Joanna Ball | updated on November 13, 2017

Authors: Marin P. Allen, Elaine Auld, Robert Logan, J. Henry Montes, and Stacey Rosen This discussion paper published by the National Academy of Medicine on July 10, 2017, provides a call-to-action for health communication, health education, and health literacy practitioners to work together to enhance human health, improve health outcomes, and reduce health disparities. Read more

CCFA Partners: Citizen Scientist Infographic

Published by Joanna Ball | updated on November 13, 2017

CCFA Partners PPRN uses this infographic as part of their strategy to recruit new members. Use this to guide the development of your own recruitment infographic, flyer, or poster.  Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on January 11, 2018

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4="https://pcornetcommons.org/wp-content/uploads/2017/06/2017-06-08-PCORnet-BPSS.mp4"][/video] Be sure to join the ongoing discussion about... Read more

REN: Top 10 Reasons to Participate

Published by Joanna Ball | updated on November 13, 2017

The Rare Epilepsy Network's (REN) "Top 10 Reasons to Participate in REN" can is used to communicate with their target community about the benefits of being a part of their network. Use this to guide the development of similar materials for connecting with your communities. Read more

The Impact of Community Involvement in Research

Published by Joanna Ball | updated on November 13, 2017

The Impact of Community Involvement in Research from PCORI on Vimeo. Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Online Research Portal

Published by Joanna Ball | updated on November 13, 2017

The recently launched INSPIRE Research Portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish.  The portal includes resources for patients and researchers to use together, as well as those specific to each group. Look through the portal to find novel ways to make the research process more inclusive.  Read more