All Outreach and Communications Resources

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on May 24, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

ImproveCareNow: Engagement Key Driver Diagram

Published by Jordan Capizola | updated on May 23, 2018

This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis   Read more

Obesity Antibiotics Study: Lay Study Guide

Published by Joanna Ball | updated on May 4, 2018

This document provides an overview of the PCORnet Obesity Antibiotics Study in plain, easy-to-understand language. The guide includes an overview of the study process, explains the goals and aims of the project, and lays out details about stakeholder engagement, and data use, protection and analysis. Read more

MS-PPRN: Patient Centered Care Webinar

Published by Jordan Capizola | updated on March 30, 2018

The Multiple Sclerosis Foundation hosted a teleconference on March 6, 2018 that focused on patient centered care and advocating for your community. The discussion was led by Cherie Binns (@cherie), Co-Chair on the PCORnet Engagement Committee and Co-Chair of the MS-PPRN Research Committee. [embed]https://www.youtube.com/watch?v=wc4E62930rE[/embed] Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | updated on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more

ImproveCareNow: OurSuccess Infographic

Published by Adrianna Evans | updated on March 1, 2018

ImproveCareNow created an infographic illustrating some of their statistical measures of success. This infographic shows a number of measures they have collected on their network's impact. Use this infographic to learn more about their impact. Read more

ImproveCareNow: OurSuccess Template

Published by Adrianna Evans | updated on March 1, 2018

A nice infographic can be really useful for outreach and recruitment activities. Getting the formatting and appearances just right can be tricky though. ImproveCareNow has shared this template of their "Our Success" graphic so that others can use their structure and fill in the numbers. Use this template to help you create your own infographic, but make sure you use your own branding and statistics! Read more

PRIDEnet: Clinician-Patient Role Play Scenarios

Published by Jordan Capizola | updated on February 6, 2018

“Role Play Scenarios” are training materials developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on their clinical expertise and practice with gender and sexual minorities, and likely informed by additional research. Read more

PRIDEnet: The PRIDE Study Community Partner Consortium CPC

Published by Jordan Capizola | updated on February 6, 2018

“The PRIDE Study Community Partner Consortium CPC” was developed by the University of California at San Francisco, and by PRIDEnet staff in discussion with Community Partner applicants.   Read more

MyApnea: Women’s Sleep Apnea Toolkit and Sleep Guide

Published by Joanna Ball | updated on January 30, 2018

The MyApnea.org resources below aim to address the unique challenges women face in getting healthy sleep. The toolkit was created by three MyApnea patients, Dr. Susan Redline, and the Society for Women’s Health Research (SWHR) and the sleep guide was developed by SWHR. Download these resources here then learn more about them in a blog post written by a MyApnea patient collaborator. Women's Sleep Apnea Toolkit Developed by MyApnea patients, Dr. Susan Redline, and SWHR Women & Sleep: A Guide for Better Health  Developed by SWHR Read more