or

All Outreach and Communications Resources

IBD Partners’ Top Citizen Scientist Award Toolkit: A model for meaningful engagement

Published by Joanna Ball | updated on August 1, 2018

In this toolkit, you will find resources IBD Partners used to create the Top Citizen Scientist Award Program. The goal of the program is to further increase participant engagement and publicly elevate the significant contributions of citizen scientists in hopes others will understand their vital role in moving IBD research forward and be inspired to get more involved. We encourage you to use these resources to develop a similar program in your community. Read more

ADVANCE: Levels of Engagement

Published by Adrianna Evans | updated on July 24, 2018

The Levels of Engagement show different degrees of involvement of stakeholders into ADVANCE. This graphic gives an idea of how engagement is structured in ADVANCE. Read more

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on June 28, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

ImproveCareNow: Engagement Key Driver Diagram

Published by Jordan Capizola | updated on May 23, 2018

This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis   Read more

Obesity Antibiotics Study: Lay Study Guide

Published by Joanna Ball | updated on June 28, 2018

This document provides an overview of the PCORnet Obesity Antibiotics Study in plain, easy-to-understand language. The guide includes an overview of the study process, explains the goals and aims of the project, and lays out details about stakeholder engagement, and data use, protection and analysis. Read more

MS-PPRN: Patient Centered Care Webinar

Published by Jordan Capizola | updated on March 30, 2018

The Multiple Sclerosis Foundation hosted a teleconference on March 6, 2018 that focused on patient centered care and advocating for your community. The discussion was led by Cherie Binns (@cherie), Co-Chair on the PCORnet Engagement Committee and Co-Chair of the MS-PPRN Research Committee. [embed]https://www.youtube.com/watch?v=wc4E62930rE[/embed] Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | updated on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more

ImproveCareNow: OurSuccess Infographic

Published by Adrianna Evans | updated on March 1, 2018

ImproveCareNow created an infographic illustrating some of their statistical measures of success. This infographic shows a number of measures they have collected on their network's impact. Use this infographic to learn more about their impact. Read more

ImproveCareNow: OurSuccess Template

Published by Adrianna Evans | updated on March 1, 2018

A nice infographic can be really useful for outreach and recruitment activities. Getting the formatting and appearances just right can be tricky though. ImproveCareNow has shared this template of their "Our Success" graphic so that others can use their structure and fill in the numbers. Use this template to help you create your own infographic, but make sure you use your own branding and statistics! Read more

PRIDEnet: Clinician-Patient Role Play Scenarios

Published by Jordan Capizola | updated on February 6, 2018

“Role Play Scenarios” are training materials developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on their clinical expertise and practice with gender and sexual minorities, and likely informed by additional research. Read more