All Engagement Resources

PaTH to Health Diabetes Study: Post Cards and Digital Newsletters

Published by Joanna Ball | updated on November 13, 2017

The "sneak peek" postcards are distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH's free bi-annual digital newsletter and feature a QR code that links directly to the newsletter. Use the postcards and newsletters below to help develop and create marketing materials for your organization. Promotional Postcards PaTH to Health Diabetes Postcard (promo for 2017 Winter/Spring newsletter) PaTH to Health Diabetes Postcard (promo for 2017 Summer/Fall newsletter) Newsletters 2017 Winter/Spring digital newsletter 2017 Summer/Fall digital newsletter    Read more

Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal from The Alzheimer’s PPRN

Published by Joanna Ball | updated on April 30, 2018

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session. The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click the "Download... Read more

REACHnet: Health in our Hands Clinic Manual

Published by Joanna Ball | updated on November 13, 2017

This document provides an understanding of REACHnet's Health in Our Hands initiative. Health in our Hands provides a way for patients to get involved in all aspects of the research process and acts as a connecting point for researchers and patients. This manual can be used to guide the creation of your own engagement materials and initiatives. Read more

Best Practice Sharing Session: Transformational Approaches to Achieving Health Equity through Engaged Research

Published by Joanna Ball | updated on December 15, 2017

These slides are from Dr. Consuelo H. Wilkins’ webinar presentation where she examines components of diversity and provides a review of engaged research approaches needed to address disparities. Dr. Wilkins is PI of the Vanderbilt-Miami-Meharry Center of Excellence in Precision Medicine and Population Health. Read more

PCORnet Engagement Committee: Engagement Assessment Tool

Published by Joanna Ball | updated on November 13, 2017

This tool describes important principles to consider throughout your shared research process. These engagement principles can help nurture essential partnerships, shape project values, and drive research progress. This assessment was adapted from a tool provided by the University of Kansas Medical Center for Frontiers: The Heartland Institute for Clinical and Translational Research # UL1TR000001 (formerly #UL1RR033179).   Read more

Patient Engagement Videos

Published by Joanna Ball | updated on November 13, 2017

In 2013, Health Affairs partnered with the Patient Centered Outcomes Research Institute (PCORI) to produce videos about ways patients and practitioners are incorporating patient engagement in health care decisions. View the videos by clicking "Download Resource." You will be redirected to the Health Affairs webpage where the videos are posted. VIDEO 1: ENGAGING PATIENTS IN HEALTH CARE DECISIONS VIDEO 2: PATIENT ENGAGEMENT RESOURCES: CARE MAPS & CLINICAL TRIALS VIDEO 3: OVERCOMING PATIENT ENGAGEMENT BARRIERS: URBAN AND RURAL SUCCESS STORIES Read more

PRIDEnet: Participant Advisory Committee Bylaws

Published by Jordan Capizola | updated on November 13, 2017

This document was created by PRIDEnet and serves as an example of how a Participant Advisory Committee is supposed to function. Use this document as an example when creating your own bylaws.   Read more

PCORnet Engagement Terms Glossary

Published by Joanna Ball | updated on November 7, 2017

This document was developed by the PCORnet Engagement Committee and contains terms commonly used in engagement activities and guidance for how to discuss engagement in the clinical research space. Read more

IAN: Community Advisory Council Summary

Published by Jordan Capizola | updated on November 7, 2017

This is a summary of what IAN's Community Advisory Council is. Use it to learn more about the Council. Read more

IAN: Community Advisory Council Charter

Published by Jordan Capizola | updated on November 7, 2017

This is IAN's charter for its Community Advisory Council. Use it to learn more about IAN. Read more