All Engagement Resources

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on June 28, 2018

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | updated on November 13, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4="https://pcornetcommons.org/wp-content/uploads/2017/06/2017-06-08-PCORnet-BPSS.mp4"][/video] Be sure to join the ongoing discussion about... Read more

REN: Top 10 Reasons to Participate

Published by Joanna Ball | updated on November 13, 2017

The Rare Epilepsy Network's (REN) "Top 10 Reasons to Participate in REN" can is used to communicate with their target community about the benefits of being a part of their network. Use this to guide the development of similar materials for connecting with your communities. Read more

Subjects no more: What happens when trial participants realize they hold the power?

Published by Joanna Ball | updated on July 6, 2018

This article published on 28 January 2014 in The BMJ, discusses the imbalances in the social contract of randomized controlled trials and how patient-powered research has emerged in response to such imbalances. This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/. Read more

The Impact of Community Involvement in Research

Published by Joanna Ball | updated on November 13, 2017

The Impact of Community Involvement in Research from PCORI on Vimeo. Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Online Research Portal

Published by Joanna Ball | updated on November 13, 2017

The recently launched INSPIRE Research Portal is an online library of resources designed for patients and researchers partnering on patient-centered outcomes research (PCOR), healthcare studies that actively engage patients in the research process from start to finish.  The portal includes resources for patients and researchers to use together, as well as those specific to each group. Look through the portal to find novel ways to make the research process more inclusive.  Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Community Workshop Report presents the four learning sessions in a community workshop held July 18 and 19, 2016, in Seattle. The workshop brought together patients and researchers who are partnering on research studies throughout the Pacific Northwest. The purpose was to advance learning about effective patient-researcher partnerships and to discuss and prioritize gaps in tools, resources and training needed to support patient-researcher partnerships in patient-centered outcomes research (PCOR). This report includes the emerging ideas and themes generated from each group discussion and concludes with a report on the workshop evaluation... Read more

Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016)

Published by Joanna Ball | updated on November 13, 2017

The attached Initiative to Support Patient Involvement in Research (INSPIRE): Findings from Phase I Interviews (2016) contains results from interviews of 23 researchers and 14 patient/family partners partnering on 23 Patient-Centered Outcomes Research Institute (PCORI)-funded projects in the Pacific Northwest. This report includes important findings on what makes partnerships successful as well as what is still needed in terms of training and support. Read more

Network Overview Presentation Template

Published by Joanna Ball | updated on June 28, 2018

Use this template to guide the creation of an overview presentation about your network or organization. Read more