All Engagement Resources

External Engagement Resources and Articles

Published by Joanna Ball | updated on November 13, 2017

Publication Title Author(s) Network for Excellence in Health Innovation Transparency in Health Care: A Priority Roadmap for Consumer Engagement  Caroline R. Steinberg, Vice President of Programs, NEHI Susan Dentzer, President and CEO, NEHI Therapeutic Innovation & Regulatory Science Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI’s Patient Groups and Clinical Trials Project Bennett Levitan, MD, PhD Kenneth Getz, MBA, Eric L. Eisenstein, DBA, Michelle Goldberg, MBA, Matthew Harker, MPH, MBA, Sharon Hesterlee, PhD, Bray Patrick-Lake, MFS, Jamie N. Roberts, MPH, MA, and Joseph DiMasi, PhD New England Journal of Medicine Catalyst Insights Council's report: Analysis of the fourth NEJM Catalyst... Read more

How To Sign Up for a PCORnet Commons Account

Published by Joanna Ball | updated on November 13, 2017

Download this step-by-step guide and learn how to create your PCORnet Commons account. Read more

How-To Get Started with Commons Groups

Published by Joanna Ball | updated on November 13, 2017

This video tutorial walks you through the steps to set up a PCORnet Commons Group. In addition, we have created a helpful infographic to accompany the video tutorial.   Getting Started with Group: A PCORnet Commons Tutorial from Joanna Ball on Vimeo. Read more

How To Submit a Resource on the Commons

Published by Joanna Ball | updated on November 13, 2017

Follow the steps in this easy-to-use infographic to submit your resources to the PCORnet Commons. Read more

Best Practice Sharing Session: Using Narratives to Promote Engagement: The MyPaTH Story Project

Published by Joanna Ball | updated on November 13, 2017

Kathleen McTigue, MD, MPH describes how the PaTH Network has developed the MyPaTH Story Project, an archive of patient stories, to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. The presentation describes how patients helped shape the project, the data that accompanies each story, and how the data collected can be used by researchers. To continue the dialogue about how patient stories can enrich your research and practice, follow the Commons Community Conversations group forum. Download the presentation slides and view the presentation using the links below. PCORnet BPSS Slides (PDF) BPSS Presentation... Read more

Improving Collaboration among Health Communication, Health Education, and Health Literacy

Published by Joanna Ball | updated on November 13, 2017

Authors: Marin P. Allen, Elaine Auld, Robert Logan, J. Henry Montes, and Stacey Rosen This discussion paper published by the National Academy of Medicine on July 10, 2017, provides a call-to-action for health communication, health education, and health literacy practitioners to work together to enhance human health, improve health outcomes, and reduce health disparities. Read more

CCFA Partners: Citizen Scientist Infographic

Published by Joanna Ball | updated on November 13, 2017

CCFA Partners PPRN uses this infographic as part of their strategy to recruit new members. Use this to guide the development of your own recruitment infographic, flyer, or poster.  Read more

Clinician Engagement for Continuous Learning

Published by Joanna Ball | updated on November 13, 2017

This discussion paper was published on March 6, 2017, in the National Academy of Medicine's NAM Perspectives. The writers address how clinicians can advance and benefit from a continuously learning health system and also describe: The potential and importance of engaging clinicians in knowledge generation The challenges and strategies for aligning priorities between clinicians and researchers The barriers to data collection at the point of care   Read more

People-Driven Research Toolkit

Published by Joanna Ball | updated on November 13, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. PXE International created this toolkit to help communities and others lead research prioritization in their community.  Open the interactive PDF document in Adobe Reader to fully benefit from its use. Published May 2017 Read more

Plain Language Principles Infographic

Published by Joanna Ball | updated on January 11, 2018

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more