All Engagement Resources

ImproveCareNow: Blog Post Sample

Published by Joanna Ball | updated on January 24, 2018

Download the ImproveCareNow (ICN) blog sample to use as an example when crafting blog content for your stakeholder groups. Published: January 2018 Read more

ImproveCareNow: eNewsletter Sample

Published by Joanna Ball | updated on January 24, 2018

Download the ImproveCareNow (ICN) eNewsletter to use as an example when crafting messages to your stakeholders. Published: Winter 2017 Read more

NephCure Kidney Network’s Research Committee Standard Operating Procedure

Published by Adrianna Evans | updated on January 24, 2018

This document provides details on the operations of NephCure Kidney Networks's Research Committee. This document explains the processes of the committee as well as it's structure and membership. You can use this document to learn more about this committee's function or help develop your own. Read more

Mid-South CDRN: Clinical Data Research Networks (CDRN) 101

Published by Adrianna Evans | updated on January 24, 2018

This presentation provides an overview of CDRNs and how they use health data. This presentation can be used to learn more about CDRNs, their projects, and how they use their data. The presentation is used for in-person informational sessions with researchers and research staff at University of North Carolina at Chapel Hill (part of Mid-South CDRN) and: Covers basic concepts of how health data is used for research and what CDRNs do Is designed to broadly talk about CDRNs Prior to each session  registrants receive survey so presenters can better prepare to address questions during the presentation. Read more

PCORnet Clinical Engagement Value Proposition

Published by Joanna Ball | updated on December 20, 2017

This resource - developed by the PCORnet Engagement Committee - provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described or adopted. As stated in the document, "Fully engaging practicing clinicians in research and dissemination of findings accelerates patient engagement and study recruitment, increases quality of research and care, especially integrating results into clinical practice. For all of these reasons, it is essential to operationalize this value proposition and identify and resource solutions." Developed by: The PCORnet Engagement Committee Published: December 2017  Read more

IBD Partners: Principles for Patient Collaboration V1

Published by Joanna Ball | updated on January 3, 2018

This resource was created by the IDB Partners Patient Governance Committee and intended to be given to investigators at the beginning of a project to help facilitate an open dialog with the patient collaborator(s). Use this to develop your own principles for effective stakeholder communication. Author(s): IDB Partners Patient Governance Committee Published: November 1, 2017 Read more

Best Practice Sharing Session: Pragmatic Trial App Suite: Supporting Patient Engagement Trial Recruitment and More

Published by Jordan Capizola | updated on November 13, 2017

This presentation helped answer the question, "How can we conduct pragmatic comparative effectiveness research more efficiently without sacrificing quality?" Tom Carton discussed the four potential solutions for multi-site pragmatic research, which included the Common Data Model, Pragmatic Trial App Suite, Global Patient ID, and Patient Network. Speaker: Dr. Tom Carton, REACHnet Final LaCDRN Best Practices Presentation Presented on May 6, 2015 Read more

Best Practice Sharing Session: Clinician Engagement

Published by Adrianna Evans | updated on November 13, 2017

Engaging clinicians in research comes with many challenges, but there are also many key solutions. This presentation, hosted both on May 20th and May 21st, 2015 outlines these aspects and steps to engaging clinicians throughout the research process. Speakers: Dr. Robert Mentz, Duke University Dr. Matthew Roe, Duke University PCORnet Clinician Engagement Read more

Best Practice Sharing Session: Engagement of Multiple Stakeholder Groups

Published by Adrianna Evans | updated on November 13, 2017

LaCDRN discusses their approaches to engaging multiple stakeholder groups. In this webinar, originally hosted on June 23, 2015, you can learn about LaCDRN's structure and how they integrate the voices of different groups within that structure. Speakers: Dr. Rebekah Angrove, LaCDRN Sarah Pallin, LaCDRN [video width="1024" height="768" mp4="https://pcornetcommons.org/wp-content/uploads/2017/11/PCORnet-BPSS-LaCDRN-Engaging-Multi-Stakeholder-Groups.mp4"][/video] Read more

Best Practice Sharing Session: CDRN – PPRN Collaborations

Published by Adrianna Evans | updated on November 13, 2017

Collaborations across networks are an essential part of PCORnet. This webinar, originally hosted on September 29th, 2015 describes ways to collaborate between CDRNs and PPRNs. If you are interested in establishing such a relationship, please take a look at this session. Speakers: Dr. Russell Rothman, Mid-South CDRN Dr. Jeff Curtis, AR-POWER Dr. Ben Nowell, AR-POWER Dr. Michael Kappelman, CCFA PPRN   CDRN PPRN Collaborations _Final_DML Read more