All Engagement Resources

Obesity Antibiotics Study: Stakeholder Engagement in Studies Toolkit

Published by Joanna Ball | updated on May 24, 2018

This collection of stakeholder engagement tools was developed with the Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet Obesity Antibiotics Study (ABX Study).  The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback survey. Comprehensive Toolkit Stakeholder Engagement Checklist Memorandum of Understanding Stakeholder Feedback Survey Author(s): ABX Study Dissemination Workgroup and Genetic Alliance Published: April 30, 2018 Read more

ImproveCareNow: Engagement Key Driver Diagram

Published by Jordan Capizola | updated on May 23, 2018

This Engagement Key Driver Diagram is an example for other networks to see how ImproveCareNow developed their Aims, Drivers, and Interventions to accomplish the changes desired for ICN network Engagement. Published July 29, 2014 Author(s): Michael Seid, Sarah Myers, and Peter Margolis   Read more

Strategies for Involving Stakeholders in Developing Research Questions & Protocols

Published by Joanna Ball | updated on May 4, 2018

Online Tools, Apps, and Social Networks Network and Tool Name Utility ABOUT Network Best Practice Sharing Session: ABOUT Network GAP Tools GAP360 is a 7-step patient-centered process that enables stakeholders to submit their own research questions through an online form. Question submissions are then: ·       Assessed via advisory board queries, community surveys, and literature reviews. ·       Prioritized by the Steering Committee, Research Work Group and Executive Committee, with recommendations for next steps. From that point, study design considerations are made, a proposal is written and submitted, the study is conducted, and results are published.   Question submissions are shared on... Read more

Obesity Antibiotics Study: Lay Study Guide

Published by Joanna Ball | updated on May 4, 2018

This document provides an overview of the PCORnet Obesity Antibiotics Study in plain, easy-to-understand language. The guide includes an overview of the study process, explains the goals and aims of the project, and lays out details about stakeholder engagement, and data use, protection and analysis. Read more

REACHnet: Accelerating Clinical Knowledge Generation and Use

Published by Joanna Ball | updated on April 10, 2018

Tom Carton (REACHnet PI), discusses the process REACHnet used to convene a multi-stakeholder group to identify research priorities among health system leaders in this January 2016 presentation given at the National Academy of Medicine-PCORI meeting, Accelerating Clinical Knowledge Generation and Use. This work was funded by PCORI Health Systems Demonstration Project: Phase 1. Read more

MS-PPRN: Patient Centered Care Webinar

Published by Jordan Capizola | updated on March 30, 2018

The Multiple Sclerosis Foundation hosted a teleconference on March 6, 2018 that focused on patient centered care and advocating for your community. The discussion was led by Cherie Binns (@cherie), Co-Chair on the PCORnet Engagement Committee and Co-Chair of the MS-PPRN Research Committee. [embed]https://www.youtube.com/watch?v=wc4E62930rE[/embed] Read more

iConquerMS: MS Minority Research Engagement Survey

Published by Adrianna Evans | updated on March 27, 2018

This presentation discusses the MS Minority Research Engagement Survey, conducted by the iConquerMS PPRN in collaboration with the Accelerated Cure Project. This survey investigated why people belonging to minority groups have lower participation in MS studies. Although work has previously been done related to other diseases, this survey looked at MS research participation specifically. Use this presentation to learn more about the results of their survey or methods to apply to a survey of your own. Read more

Community Engagement Studio Toolkit 2.0

Published by Adrianna Evans | updated on March 28, 2018

The Community Engagement Studio Toolkit is part of a service offered by the Meharrry-Vanderbilt Community Engage Research Core (CERC) stemming from the Vanderbilt Institute for Clinical and Translational Research (VICTR). This toolkit helps increase the capacity of researchers to engage the community in research activities by providing a framework for them to work from. Use this resource to learn more about this method of community engagement or learn new engagement skills. Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | updated on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more

ImproveCareNow: OurSuccess Infographic

Published by Adrianna Evans | updated on March 1, 2018

ImproveCareNow created an infographic illustrating some of their statistical measures of success. This infographic shows a number of measures they have collected on their network's impact. Use this infographic to learn more about their impact. Read more