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Rare Epilepsy Network (REN): Online Data Dashboard

Published by Adrianna Evans | updated on March 27, 2018

The Rare Epilepsy Network (REN) has developed a website exclusively for visualization of their baseline data. This website shows a number of different visual representations of their data. These visual representations can be changed by clicking on different variables. This tool can be used to better understand the REN study population. Read more

PRIDEnet: PCORnet Recommendations for SOGI Data Elements in CDM v3.1

Published by Jordan Capizola | updated on February 6, 2018

"PCORnet Recommendations for SOGI Data Elements in CDM v3.1” was written by co-directors Dr. Mitchell Lunn and Dr. Juno Obedin-Maliver. It is based on research literature, our co-directors’ clinical and research expertise, and definitely informed by participant data in our pilot research (~18,000 enrolled participants).   Read more

Best Practice Sharing Session: Statistical Analyses in Distributed Research Networks

Published by Jordan Capizola | updated on November 13, 2017

Dr. Toh and Dr. Li gave examples of research conducted within distributed networks with horizontally partitioned data. They then hosted a discussion and spoke about how vertically partitioned data could be useful to PCORnet. Speakers: Dr. Darren Toh, Harvard Medical School/Harvard Pilgrim Health Care Institute Dr. Lingling Li, Harvard Medical School/Harvard Pilgrim Health Care Institute Statistical analyses in distributed research networks Presented on March 16, 2015 Read more

PCORnet Bariatric Study: Analytic Plan

Published by Joanna Ball | updated on June 28, 2018

Use the PCORnet Bariatric Study's detailed analytic plan to inform the development of your own comprehensive analysis plan. This plan was developed by the Methods Core with feedback from the Scientific Core, Executive Bariatric Stakeholder Advisory Group, and the Clinical Data Research Network (CDRN) Bariatric Principal Investigators. Read more