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Returning Study Results

Public Group active 1 week, 3 days ago

A sub-group of the Research Innovations Work Group to study the landscape of information, guidelines, principles and resources around the subject of returning study results to participants, evaluate existing tools and/or develop common tools and promote collaboration across PCORnet, the national RIC and beyond.
The scope of this group is limited to the process of returning final study results to participants and not the return of individual study results to participants.

Michael J. Fox Foundation: FOX TRIAL FINDER

This topic contains 0 replies, has 1 voice, and was last updated by  Mina Baqai 2 months, 3 weeks ago.

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    Mina Baqai
    Participant

    There are several real- world examples of linking interested patients with potential research studies.  One example is the FOX TRIAL FINDER ( https://www.michaeljfox.org/page.html?Find-a-Tria)l– an online clinical trial matching tool managed by the Michael J. Fox Foundation.  Patients create a profile with basic information.  The site has security protocols in place to protect patient information.  The profile is reviewed and a customized list of trials in the patient’s geographic area is sent to the patient (and when new trials begin, those are sent as well).  The patient can then securely connect with the trial teams regarding possible participation in the study.

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