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Returning Study Results

Public Group active 5 days, 1 hour ago

A sub-group of the Research Innovations Work Group to study the landscape of information, guidelines, principles and resources around the subject of returning study results to participants, evaluate existing tools and/or develop common tools and promote collaboration across PCORnet, the national RIC and beyond.
The scope of this group is limited to the process of returning final study results to participants and not the return of individual study results to participants.

Annotations: GRIPP2 reporting checklists: tools to improve reporting of..

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This topic contains 0 replies, has 1 voice, and was last updated by  Tamara Wurst 6 months ago.

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    Tamara Wurst
    Participant

    Title: GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

     

    GRIPP – Guidance for Reporting Involvement of Patients and the Public

     

    International guidance for reporting of patient and public involvement in health and social care research: aim is to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence.

     

    GRIPP2 development:

    • Improves on the original GRIPP, which only drew on systematic review evidence and lacked input from the international PPI research community – GRIPP2 tackled this gap by developing a consensus in the international PPI community.
    • 2 versions:
      • GRIPP2-LF – long form for studies where PPI is the focus of the study
      • GRIPP2-SF – short form for studies where PPI is a secondary or tertiary focus
    • Developed using the EQUATOR method: systematic review evidence; a three stage Delphi survey including key stakeholders in the field; and a face to face collaborative meeting.
      • participants included researchers, funders, patients, carers, editors, and individuals from international research agencies(meeting did not include international experts due to budget restrictions).
    • Both checklists are provided in the article and the article says they are available on the EQUATOR webpage, but I was unable to find them there.
    • An example of how the short form would be used is included with a note that an example of the long form can be obtained by the authors.

     

    Scope and Illustration of Use:

    • Checklist provides key PPI concepts that authors should report in papers
    • Can be used prospectively to plan PPI for studies and retrospectively for QA in writing
    • Entire paper could be shaped by the GRIPP2-LF or guidelines could be sprinkled throughout the paper
    • Funders could promote adherence
    • Editors could use GRIPP2 to set expectations

     

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