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Returning Study Results

Public Group active 5 months, 1 week ago

A sub-group of the Research Innovations Work Group to study the landscape of information, guidelines, principles and resources around the subject of returning study results to participants, evaluate existing tools and/or develop common tools and promote collaboration across PCORnet, the national RIC and beyond.
The scope of this group is limited to the process of returning final study results to participants and not the return of individual study results to participants.

Annotation: Strategies for effective dissemination. Genetic Alliance.

This topic contains 0 replies, has 1 voice, and was last updated by  Mina Baqai 10 months, 4 weeks ago.

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    Mina Baqai

    This document includes brief reviews of 8 different strategies for effective dissemination, some from PCORnet CDRNs and studies, others from published papers and policies.   They summarize these strategies into a list of 5 things that you can do to ensure that community members benefit from your research.

    1. Use common language and practices.
    2. Communicate your study results back to your study participants.
    3. Be culturally sensitive regarding native language and experiences.
    4. Make your dissemination materials accessible in multiple ways (e.g., print, online)
    5. Integration people in the research process from the beginning.
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