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Returning Study Results

Public Group active 7 months, 1 week ago

A sub-group of the Research Innovations Work Group to study the landscape of information, guidelines, principles and resources around the subject of returning study results to participants, evaluate existing tools and/or develop common tools and promote collaboration across PCORnet, the national RIC and beyond.
The scope of this group is limited to the process of returning final study results to participants and not the return of individual study results to participants.

Annotation: Accelerating Clinical Trials

This topic contains 0 replies, has 1 voice, and was last updated by  Mina Baqai 11 months, 4 weeks ago.

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    Mina Baqai

    The Accelerating Clinical Trials: Best Practices for Recruitment and Retention guide developed by the Michael J Fox Foundation has a number of strategies and tools identified for recruitment of patients for trials.  Patients are engaged in all of their examples including Building a Recruitment Strategy Toolkit ( where patients are part of the key stakeholders group.

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