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Returning Study Results

Public Group active 4 months, 1 week ago

A sub-group of the Research Innovations Work Group to study the landscape of information, guidelines, principles and resources around the subject of returning study results to participants, evaluate existing tools and/or develop common tools and promote collaboration across PCORnet, the national RIC and beyond.
The scope of this group is limited to the process of returning final study results to participants and not the return of individual study results to participants.

Annotation: 3. PCORnet Coordinating Center (Harvard): Study Initiation Guide

This topic contains 0 replies, has 1 voice, and was last updated by  Mina Baqai 4 months, 1 week ago.

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    Mina Baqai
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    Dissemination is an important aspect of research activities and should be planned for from the outset of applications and throughout the duration of a study. There are opportunities for sharing research outcomes, resources, and lessons learned both within and outside the PCORnet Community. Throughout all dissemination activities, a plan for stakeholder engagement and participation should be established and maintained. This perspective can help broaden dissemination opportunities to patients and professionals within the field, as well as improve lay communications.

    There are multiple avenues to distribute study updates and communications to the PCORnet community, such as: weekly announcements, leadership calls, and the PCORnet Commons. These options allow researchers to share insights and experiences that can improve future PCORnet activities and contribute to a repository of resources for study teams. Dissemination beyond the PCORnet community can include the publication of manuscripts, conference presentations, and study websites. Both internal and external PCORnet dissemination offers the opportunity for stakeholder input and collaboration of a larger authorship group including representatives from sites that contributed to the study.

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