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Direct to Patient Recruitment

Public Group active 1 week, 4 days ago

A sub-group of the Research Innovations Working Group (RIWG) to study the landscape of tools and resources around Direct to Patient Recruitment, evaluate existing tools and/or develop common tools, promote collaboration and promotion of tools across PCORnet, the RIC and beyond.

Annotations: AR-PoWER- May Introduction and Consent Language

This topic contains 0 replies, has 1 voice, and was last updated by  Rebecca Moultrie 2 months, 2 weeks ago.

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    Rebecca Moultrie
    Participant

    Annotation for: AR-PoWER- May 2015 Introduction and Consent Language

    Link: https://pcornetcommons.org/resource_item/ar-power-may-2015-introduction-and-consent-language/

    • overview and video is presented prior to the consent form
    • the above is delivered by the president of the organization (CreakyJoints) who is also an arthritis patient
    • the overview and video emphasize the difference participation in the registry can make- framing as “you”, instilling a sense of empowerment plus altruism
    • registry participants are given a role with title (“citizen researcher”)
    • consent screen (on the web) includes brief bullets of information and participant confirms understanding after each before moving on to reading the full consent form
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