ArthritisPower (AR-PoWER PPRN)Private Group active 10 months, 1 week ago
ArthritisPower (AR-PoWER PPRN), the first ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions, was created by CreakyJoints in collaboration with the University of Alabama at Birmingham, and supported by a multi-year, multi-million dollar investment by the Patient-Centered Outcomes Research Institute (PCORI). This group is for ArthritisPower team members to share information and documents.
The free ArthritisPower mobile and desktop application allows patients to track and share their symptoms and treatments while simultaneously participating in research via informed consent. ArthritisPower Patient Governors serve as gatekeepers for researchers seeking to access registry data or solicit the community to participate in unique, voluntary studies. To learn more and join ArthritisPower, visit http://www.ArthritisPower.org
This is a private group. To join you must be a registered site member and request group membership.