PCORI LHS Pilot Community FAQ from Oct 19 + LHS Model Diagram

Q:  May we invite other individuals involved or interested in our network to Office Hours calls?

   A:  Yes, absolutely!

Q:  When will we receive feedback on our LOI?

   A:  A single response to the 11 LOIs will be sent to applicants and posted on the PCORnet Commons during the week of October 30.  It will address general themes, strengths and areas for attention or improvement.

Q:  Is your role in helping us put together a credible application as a coach? Can you give feedback or direction? Many of us have not put together a LHS before.

   A:  Yes, that is our role.  We will not review your applications; for that there is an eminently qualified independent review committee.  We are available for individual and group coaching; we find both are helpful.  To schedule, you can use the pcornetlhscommunity@cchmc.org email or email anyone on the Core team directly.  We expect many of you will be struggling with the same issues.  Our coaching method will be asking more questions than we answer, since your network must go through its own individualized strategic planning process for your network’s particular stage of development, which will affect your choices.  So there is no “right” answer; what’s right is what’s right for your particular network.

Q:  Is there a central place to find resources so far?

   A:  Yes, in the PCORnetCommons.org, in the Docs section of the PCORnet LHS Communities group: https://pcornetcommons.org/groups/pcornet-lhs-communities-1766526687/ .

Q:  How should we use the Network Maturity Model?

   A:  Many networks are constellations of networks, anywhere from 4 to 25…. The appreciative inquiry approach recommends starting with emphasizing your respective strengths, so each group within your network might first assess itself then share what assets it can bring to the overall network.  Also, within the domains or sub-components of the Maturity Model, we recommend starting with easy problems that you identify first, even if they are less exciting.  Or, think about system barriers.

Q:  What are your thoughts on the timeline with the two years of PCORI funding, since the development timeline for a learning network is much longer?

   A:  The first year is for design. It includes thinking about what matters most to your population and what you want to accomplish, then big, system-level changes you want to test, as well as recruiting and onboarding participating clinical sites, and finally setting up your data system for continuous monthly reporting.  In the second year, you will start to run a multi-site collaborative improvement network. [The current version of the Anderson Center Learning Health System Network Model is attached to this post.]  We want each of the networks to learn how to do that.  In our experience, from the time you bring sites together to the time you would see a change in outcomes is about two years, although you would probably see improvement in process measures sooner.  Networks who have gone through this process will be available to help you!

Q:  Will each network build its own version of an LHS network?

   A:  Each network needs to put together its own version of the LHS Network Model. We think about 80% of running a LHS network is similar; and we will be providing tools and you can customize. For example, any agenda for a community learning session would be very similar.  And with regard to quality improvement training, we don’t want anybody to have to reinvent how to do it; we have many resources to share with you.

Q:  How can PPRNs who are not selected for the pilot continue to participate?

   A:  Everyone is invited to our Community Learning Sessions twice a year.  And we will probably continue to host webinars to share our learning.

Q:  Who will be available for coaching?

   A:  In the Breakthrough Series collaborative model, we call all stakeholders in a network – patients, caregivers, clinicians, researchers – “Faculty.” In addition to the Core team on the Office Hours calls, there will be a good mix of faculty experts available to coach you.  We will be sharing a list of faculty and their bios with you in the coming months.

Q:  Are there any examples of partnerships among learning networks, especially in rare diseases? Do they have systems and processes that they can share with us?

   A:  Yes, we are starting to see similarities among rare disease networks and opportunities for problem solving.  We can follow up with your network individually.  We encourage cooperation with other groups, just because of the complexity of the infrastructure.

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