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Cross-Network Code Repository

Published by Joanna Ball | Published on April 13, 2017

These resources have been shared by various PCORnet Networks to foster cross-collaboration.  Greater Plains Collaborative code resources:  TRAC Wiki: https://informatics.gpcnetwork.org/trac/Project/wiki/DevTeams Github: https://github.com/kumc-bmi Bitbucket: https://bitbucket.org/MCW_BMI/unstructured-notes-deidentification Known code branches for PCORnet across CDRNs: Github: https://github.com/PCORnet/DataCommittee/wiki/Community Read more

Best Practice Sharing Session: ABOUT Network GAP Tools

Published by Joanna Ball | Published on April 12, 2017

ABOUT Network’s GAP 360 and GAP Tools process is a 7-step process for patient-centered research. Dr. Sue Friedman describes the GAP Tool process and discusses how hereditary cancer research gaps are identified through its use. Download the slide deck above (click “Download Resource”), or view the presentation. Read more

PaTH to Health: Diabetes Study – Post Card and Digital Newsletter

Published by Joanna Ball | Published on March 30, 2017

These "sneak peek" postcards are distributed to PaTH to Health: Diabetes primary care providers, patient partners, and stakeholders to increase their exposure to PaTH's free biannual digital newsletter. The postcard features a QR code that links directly to the newsletter. Use the postcard and the linked digital newsletter to help develop and create marketing materials for your organization.   Read more

Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal

Published by Joanna Ball | Published on March 14, 2017

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session.The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click "Download Resource"), or... Read more

REACHnet: An overview and implications for clinical research

Published by Joanna Ball | Published on February 28, 2017

This report provides readers with a closer look at Research Action for Health Network's (REACHnet) framework, functions, and goals and how their work will impact the clinical research space. Read more

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