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EHR Implementation Guide V.1

Published by Joanna Ball | Published on November 30, 2017

The PCORnet EHR-extraction pilot project is underway with three PPRNs (Interactive Autism Network, NephCure Kidney Network, and Phelan McDermid Syndrome Data Network) to acquire electronic health record (EHR) data from network participants for the purposes of research. This implementation guide outlines the steps and resources necessary for an organization to begin acquiring structured EHR data through participant use of a proxy-based application, with the purpose of  describing the technical components, tasks, resources, management approach, and schedule used to complete the PCORnet EHR-extraction pilot project. Author(s): EHR Pilot Team Published November 2017 Read more

Best Practice Sharing Session: PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2

Published by Adrianna Evans | Published on November 30, 2017

This presentation, originally recorded on, November 13, 2017, looked at e-consent from several different perspectives. The presentation discussed different technologies used to obtain consent in different contexts. It details different guidelines as well as use of layered consent. Speakers: Dr. Holly Peay, RTI Dr. Erin Rothwell, University of Utah David Borasky, WIRB-Copernicus Group   [video width="1024" height="768" mp4="http://pcornetcommons.org/wp-content/uploads/2017/11/2017-11-13-PCORnet-BPSS_Recording.mp4"][/video]   Read more

Strategies for Effective Dissemination

Published by Joanna Ball | Published on November 3, 2017

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Best Practice Sharing Session: Design and Development of an Operational Privacy Protecting Record Linkage Tool

Published by Jordan Capizola | Published on November 1, 2017

Dr. Kho discussed how to protect and secure data online. He also explained the ongoing work to develop new security features. Speaker: Dr. Abel Kho, CAPriCORN PCORnet_Best_Practices_4_29_15 Presented on April 29, 2015 Read more

Best Practice Sharing Session: PROMIS and It’s Place in PCORnet

Published by Jordan Capizola | Published on November 1, 2017

This presentation gave an overview of how PROMIS can provide reliable, flexible, and responsible treatment options to patients across multiple health domains. Speaker: Dr. David Cella, CAPriCORN PCORI Office Hours seminar_1-12-15_cella Presented on January 15, 2015 Read more

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