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People-Driven Research Toolkit

Published by Joanna Ball | Published on June 22, 2017

The People-Driven Research Toolkit is intended to facilitate people-driven research ideation and prioritization. Be sure to open the interactive PDF document in Adobe Reader to fully benefit from its use. Read more

Plain Language Principles Infographic

Published by Joanna Ball | Published on June 9, 2017

This infographic is focused on health literacy and using plain language in health research communications. Use these principles to help guide the creation of content that is easy to access and understand by a variety of audiences. Read more

Best Practice Sharing Session: Leveraging Social Media to Raise Awareness and Build Community

Published by Joanna Ball | Published on June 9, 2017

Social media specialists Joseph M. Coe, MPA from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and M. Patricia McAdams, MS from PCORnet’s first demonstration study, ADAPTABLE, explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding. The session covers how to use metrics to inform channel strategy and content, how collaborations and partnerships can help reach more people, and offers guidelines, best practices, and useful tools and tips. PCORnet BPSS Slides (PDF) BPSS Presentation Recording (below) [video width="480" height="360" mp4=""][/video] Be sure to join the ongoing discussion about... Read more

PCORnet Resources and Environment (for use in grant applications)

Published by Joanna Ball | Published on May 9, 2017

This template text was composed for PCORnet investigators and collaborators of PCORnet to use in grant applications to describe the resources available and environment of PCORnet. Details of the PCORnet Distributed Research Network (DRN) structure, data infrastructure and security, and services and use cases are described. Read more

REN: Top 10 Reasons to Participate

Published by Joanna Ball | Published on May 9, 2017

The Rare Epilepsy Network's (REN) "Top 10 Reasons to Participate in REN" can is used to communicate with their target community about the benefits of being a part of their network. Use this to guide the development of similar materials for connecting with your communities. Read more

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