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Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal

Published by Joanna Ball | Published on March 14, 2017

The Alzheimer’s PPRN describes their use of the Brain Health Registry Caregiver and Study Partner Portal in this PCORnet Best Practice Sharing Session.The online tool facilitates people-centered health research by assisting with recruitment, engagement, assessment, and education of caregivers. Dr. Michael W. Weiner, MD, Dr. Ronald C. Petersen, MD, PhD and Dr. Rachel L. Nosheny, PhD discuss the data collected using the Caregiver Portal and its potential impact on dementia research as well as ways the portal can be used to engage caregivers and study partners within and outside the PCORnet community. Download the slide deck above (click "Download Resource"), or... Read more

REACHnet: An overview and implications for clinical research

Published by Joanna Ball | Published on February 28, 2017

This report provides readers with a closer look at Research Action for Health Network's (REACHnet) framework, functions, and goals and how their work will impact the clinical research space. Read more

REACHnet: Health in our Hands Clinic Manual

Published by Joanna Ball | Published on February 28, 2017

This document provides an understanding of REACHnet's Health in Our Hands initiative. Health in our Hands provides a way for patients to get involved in all aspects of the research process and acts as a connecting point for researchers and patients. This manual can be used to guide the creation of your own engagement materials and initiatives. Read more

Quality by Design Principles for PCORnet Clinical Trials

Published by Joanna Ball | Published on February 13, 2017

This document was prepared by the Clinical Trials Task Force and adapted from a project conducted by the Clinical Trials Transformation Initiative. The content of the document is meant to promote proactive, cross-functional discussions and critical thinking as you begin trial development. Read more

Best Practice Sharing Session: Transformational Approaches to Achieving Health Equity through Engaged Research

Published by Joanna Ball | Published on February 6, 2017

These slides are from Dr. Consuelo H. Wilkins’ webinar presentation where she examines components of diversity and provides a review of engaged research approaches needed to address disparities. Dr. Wilkins is PI of the Vanderbilt-Miami-Meharry Center of Excellence in Precision Medicine and Population Health. Read more

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