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Research Proposal Intake Guidance & Examples

Published by Joanna Ball | Published on February 13, 2018

  Interactive Autism Network (IAN) IAN provides research matching services where external researchers can apply to access the IAN cohort. Research projects must meet specific requirements to be eligible but does not have a formal proposal review/evaluation process. However, IAN also works with the Simons Foundation Powering Autism Research for Knowledge (SPARK) to develop and implement similar processes. This work has resulted in a template for evaluating studies for SPARK Research Match. (updated January 2018)   PRIDEnet The PRIDEnet Participant Advisory Committee (PAC) has developed the The PRIDE Study Ancillary Study Proposal Form to provide researchers and community partners guidance for applying to conduct Ancillary... Read more

ImproveCareNow: Communications/Social Media Template

Published by Jordan Capizola | Published on February 6, 2018

This template was created by ICN to better manage their communications and social media.   Read more

PRIDEnet: 2017 Annual Questionnaire

Published by Jordan Capizola | Published on January 31, 2018

“2017 Annual Questionnaire” is our current, live Annual Questionnaire for The PRIDE Study. It was developed by our Research Advisory Committee (Drs. Obedin-Maliver, Lunn, Annesa Flentje, Matthew Capriotti, Micah Lubensky). It is based primarily on many published scales and pre-existing questionnaires, but also includes some novel questions created by our Research Advisory Committee. It is definitely informed by feedback from our pilot research (~18,000 enrolled participants), including types of health information collected, and research question language and composition. Read more

PRIDEnet: Clinician-Patient Role Play Scenarios

Published by Jordan Capizola | Published on January 31, 2018

“Role Play Scenarios” are training materials developed by co-directors Dr. Juno Obedin-Maliver and Dr. Mitchell Lunn, based on their clinical expertise and practice with gender and sexual minorities, and likely informed by additional research. Read more

PRIDEnet: Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators

Published by Jordan Capizola | Published on January 31, 2018

"Sociodemographic Characteristics and Health Outcomes Among Lesbian, Gay, and Bisexual U.S. Adults Using Healthy People 2020 Leading Health Indicators" is a refereed journal publication written in collaboration by PRIDEnet PI, Dr. Mitchell Lunn (@mitchlunn) and others. It references  The PRIDE Study and PRIDEnet's relationship with PCORI. Published: 2017 LGBT Health,  Volume 4, Number 4 Authors: Mitchell R. Lunn, MD, MAS,1–3 Wanjun Cui, PhD, MS,4 Matthew M. Zack, MD, MPH,4 William W. Thompson, PhD,5 Michael B. Blank, PhD,6–8 and Baligh R. Yehia, MD, MPP, MSc9,10 DOI: 10.1089/lgbt.2016.0087   Read more

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