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PCORnet Bariatric Study: Scientific Writing Lay Guide

Published by Joanna Ball | Published on October 6, 2017

This scientific writing lay guide was developed by the PCORnet Bariatric Study (PBS). The guide provides an overview of the general scientific manuscript writing process, including International Committee of Medical Journal Editors (ICJME) criteria guidelines, journal submission, and the specific process used in PBS. The guide can be shared with non-scientific stakeholders and revised to reflect the writing process in your study. If you have questions about this guide, please contact: Kathleen McTigue (kmm34@pitt.edu) Karen Coleman (J.Coleman@kp.org) Published June 2017 Read more

Stakeholder Feedback Survey Template

Published by Joanna Ball | Published on October 6, 2017

Use this survey template to guide the development of a tool to evaluate patient/participant engagement in your networks' research studies. Author(s): The Executive Antibiotics Stakeholder Advisory Group and the Engagement Leadership Core Published October 2017 Read more

Collecting Community Stories: The MyPaTH Story Booth Toolkit

Published by Joanna Ball | Published on October 3, 2017

This toolkit is designed to help you collect rich and meaningful stories from your community. The MyPaTH’s Story Booth materials in this toolkit include sample flyers, brochures, and interview prompts that can be adapted to your community with approval from the MyPaTH Story Booth IRB. Begin collecting and archiving your community’s stories in partnership with the MyPaTH Story Booth team! Want to learn more about the Story Booth Project? Visit the MyPaTH Story Booth website Listen to the PCORnet Best Practice Sharing Session about the MyPath Story Booth Published October 2017 Read more

Strategies to Increase Inclusiveness

Published by Joanna Ball | Published on October 2, 2017

Title Source / Author(s) Key FIndings A community-partnered, participatory cluster-randomized study of depression care quality improvement:  Three-year outcomes July 2017, Psychiatric Services, Ong, M.K. et al.   Article highlights the incorporation of Community Partnered Participatory Research Network’s (CPPRN) principles of trust development, respect, equal power sharing, and two-way knowledge exchange in clinical research. Community Engagement and Planning was more effective than Resources for Services in improving mental health-related quality of life, reducing hospitalizations, and shifting services toward community-based programs. Strategies addressing barriers to clinical trial enrollment of underrepresented populations: A systematic review Nov. 2014, Contemporary Clinical Trials Heller, C. et... Read more

Wisconsin Network for Research Support (WINRS): Hard-to-Reach Patient Stakeholders: An Engagement Guide

Published by Joanna Ball | Published on October 2, 2017

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a toolkit for researchers and others who want to engage hard-to-reach stakeholders for patient-centered projects, including patient-centered outcomes research (PCOR). The toolkit was developed by the Wisconsin Network for Research Support (WINRS), a patient and community engagement resource based at the University of Wisconsin-Madison School of Nursing. The toolkit includes templates that researchers can adapt for specific projects, including a form to help researchers respectfully contact a community-based organization about collaboration on a research project. Important Information: HARPS is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. If you use or adapt... Read more

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